Ugh, I"m so sorry, @Thinktank. Last year I had a doctor Rx it while she was looking at my list of adverse reactions. I feel fortunate that I...
I wonder if taking something like GABA would help calm the brain from over-stimulation during travel? I used to use very low-dose (0.25mg)...
omg, i can't even choose which ones to send you erin! http://www.funslurp.com/unique-band-aids
@Mattie, can I come live in your village? It's gorgeous!
Wow, @erin, that's a new one on me! Do you have fun tape like Hello Kitty or Batman? :alien: I get carsick fairly easily too, I'm gonna give that...
[n.b. this post inspired by Alvin, not directed at Alvin] The foundation of all his arguments is his core belief system that the illness itself...
I'm still at the passenger-seat phase, with only short journeys, so my input may not apply--as I am seeing and hearing all the things that (newly)...
Thank you for letting us know, @Clare. This is a very strong step in the direction of best support for patients. I agree it would be useful to...
I feel the title of the next ME/CFS history book coming on....
So sciency!
Happily, there's a public record.
So I guess by patient burden he means that wearing a fitbit (or whatever was available at the time) was more burdensome than constantly having to...
Besides presenting that clever soundbite of doublespeak (....To regard CFS as a physical disease would be as great an error as to regard it as a...
So we totally agree, Alvin; and I in no way advocated ignoring people, just to be very clear. I stated outright that I am glad people are...
@dave30th Another suggestion I have found helpful is to post an update to the crowdfunding platform, as well as to the other ways you are sharing...
Personally, I'd prefer people just tweet great stuff like the patient testimonials above and let it rest on its power, without snarking at MS or...
Yes, I understand that completely, but I wouldn't want someone tweeting my posts without asking me (not that anyone would want to,) especially if...
So much love for the increasing media getting it right!
Did they ask JE's permission to tweet that?
Even "just a trial" is an after-the-fact obfuscation. Why then did "just a trial" so heavily influence treatment protocols worldwide? Why did...
Separate names with a comma.
