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  1. Allele
    Post

    Esther Crawley gets 'commendation' at 2017 Maddox Prize awards.

    Thank you so much for this, JE.
    Post by: Allele, Jan 5, 2018 in forum: General ME/CFS news
  2. Allele
    Post

    Royal College of Paediatrics and Child Health conference, 13-15th March 2018, "Children First – Ethics, Morality and Advocacy in Childhood"

    ffs
    Post by: Allele, Jan 4, 2018 in forum: Psychosomatic news - ME/CFS and Long Covid
  3. Allele
    Post

    Unrest - reviews and general articles

    I wanted to add that the strong scene where she has to be lifted to the ground from her wheelchair by Omar was intended I think to illustrate to...
    Post by: Allele, Jan 4, 2018 in forum: General ME/CFS news
  4. Allele
    Post

    Germany vs Elsevier: universities win temporary journal access after refusing to pay fees

    W00t! Now a global action to this end!
    Post by: Allele, Jan 4, 2018 in forum: Research methodology news and research
  5. Allele
    Thread

    Public Sessions Just Recriminalized Medical Cannabis

    https://apnews.com/19f6bfec15a74733b40eaf0ff9162bfa WASHINGTON (AP) — Attorney General Jeff Sessions has rescinded an Obama-era policy that...
    Thread by: Allele, Jan 4, 2018, 9 replies, in forum: Other health news and research
  6. Allele
    Post

    Unrest - reviews and general articles

    I'm sorry I forgot to answer you in the other thread. I don't recall much but I know she showed herself unable to walk, tolerate noise, light,...
    Post by: Allele, Jan 4, 2018 in forum: General ME/CFS news
  7. Allele
    Post

    Free nasal microbiome test/study at uBiome

    I didn't see anywhere to tell them of existing medical conditions--did anyone else find this?
    Post by: Allele, Jan 4, 2018 in forum: Nutrition, food sensitivity, microbiome treatments
  8. Allele
    Post

    Blog: "The PACE PLOS One data will not be released and the article won’t be retracted", James Coyne

    I'm starting to think the BPS people have photos of everyone else wearing tutus and having sex with animals or something :bag:
    Post by: Allele, Jan 4, 2018 in forum: General ME/CFS news
  9. Allele
    Post

    Trial By Error: The School Absence Study, Revisited (Crawley/SMILE)

    I'm also not certain it is ethical to have a medical professional not of the parents' choice at the meeting that was already likely high-tension...
    Post by: Allele, Jan 4, 2018 in forum: General ME/CFS news
  10. Allele
    Post

    Blog: "The PACE PLOS One data will not be released and the article won’t be retracted", James Coyne

    Thank you Val. What a bunch of corrupt cronies. So over a world that supports and encourages this way of being.
    Post by: Allele, Jan 3, 2018 in forum: General ME/CFS news
  11. Allele
    Post

    Blog: "The PACE PLOS One data will not be released and the article won’t be retracted", James Coyne

    Am very unwell, can someone TL;DR please? I don't understand how the data will not be released if it is a condition of publication.
    Post by: Allele, Jan 3, 2018 in forum: General ME/CFS news
  12. Allele
    Post

    Let's talk wheelchairs and mobility scooters

    So much great feedback here, thank you all so much. I'm stupid tired right now so can't reply just yet--just wanted to thank you all for chiming...
    Post by: Allele, Jan 2, 2018 in forum: Home adaptations, mobility and personal care
  13. Allele
    Post

    Open letter to TEDxBristol regarding Esther Crawley's presentation on 2 November 2017

    The problem is the more we respond to her TED talk, the more she and they get to say "See? I was right! I was right! See the crazy loons coming...
    Post by: Allele, Jan 2, 2018 in forum: Open Letters and Replies
  14. Allele
    Post

    Jen Brea comments on Esther Crawley's behaviour

    The reason it might be useful to try both of these now is bc the landscape is entirely more fertile at this moment. The momentum is building in a...
    Post by: Allele, Dec 31, 2017 in forum: General ME/CFS news
  15. Allele
    Post

    Jen Brea comments on Esther Crawley's behaviour

    100% agree with this eloquent riposte. You speak for me :cool:
    Post by: Allele, Dec 31, 2017 in forum: General ME/CFS news
  16. Allele
    Post

    Coyne and Michael Sharpe on Twitter

    All I can say to his tweet is: Word
    Post by: Allele, Dec 31, 2017 in forum: Psychosomatic news - ME/CFS and Long Covid
  17. Allele
    Post

    Buzzfeed News - A Controversial Therapy For ME Has Led To Claims Of Death Threats, Harassment, And Pseudoscience

    You need to read all the tweets (there are a lot!) as she fully calls her out, repeatedly.
    Post by: Allele, Dec 31, 2017 in forum: Psychosomatic news - ME/CFS and Long Covid
  18. Allele
    Post

    Contribution to science of Regius Professor Sir Simon Wessely: a thirty year retrospective

    Have you written to her? It might be really good to send her quotes she can use that can't backfire.
    Post by: Allele, Dec 31, 2017 in forum: General ME/CFS news
  19. Allele
    Post

    Contribution to science of Regius Professor Sir Simon Wessely: a thirty year retrospective

    *shudder* I felt like taking a long shower after reading those quotes.
    Post by: Allele, Dec 31, 2017 in forum: General ME/CFS news
  20. Allele
    Post

    Unrest gets a mention in "The best documentries of 2017" @ Vox

    Haha, that I did! She does not go into it much iirc other than mentioning the newer CDC name is stupid and misleading (paraphrasing, maybe someone...
    Post by: Allele, Dec 31, 2017 in forum: General ME/CFS news
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