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  1. Allele
    Post

    To Your Good Health: 'Chronic Fatigue Syndrome Has a New Name, Possibly a New Test' - Dr. Roach in Valley News (April 21,2018)

    Did you read it? It's not really garbage at all, imo.
    Post by: Allele, Apr 22, 2018 in forum: General ME/CFS news
  2. Allele
    Post

    (Not a recommendation) CFS or where is my stocking?

    I'm not sure we should make a consensus reality out of the concept that ME is "pseudoscientific." I'm not keen on the name myself, but FWIW the...
    Post by: Allele, Apr 22, 2018 in forum: Psychosomatic news - ME/CFS and Long Covid
  3. Allele
    Post

    The ME Show

    @Gary Burgess I think it would be grand at some point to do several segments about the politics of the disease, and the commercial interests...
    Post by: Allele, Apr 21, 2018 in forum: General ME/CFS news
  4. Allele
    Post

    Wesselys Mental Health review could also replace Mental Capacity Act

    See also @Samuel's excellent essay with this same theme:...
    Post by: Allele, Apr 21, 2018 in forum: Other health news and research
  5. Allele
    Post

    Video: Fighting for M.E. with Carol Head | April 2018

    I'm guessing the reference is to those who may still be gun-shy from the legacy of CAA? Personally I think SMCI has been an amazing resurrection...
    Post by: Allele, Apr 21, 2018 in forum: General ME/CFS news
  6. Allele
    Post

    The ME Show

    oopsie
    Post by: Allele, Apr 21, 2018 in forum: General ME/CFS news
  7. Allele
    Post

    The ME Show

    Thank you, Gary, I'm really looking forward to listening :)
    Post by: Allele, Apr 21, 2018 in forum: General ME/CFS news
  8. Allele
    Post

    Wesselys Mental Health review could also replace Mental Capacity Act

    This is a rising worldwide issue everyone should be alarmed about. There are already terms for these things, like "oppositional defiance disorder"...
    Post by: Allele, Apr 21, 2018 in forum: Other health news and research
  9. Allele
    Post

    Myalgia, amitriptyline and alternatives

    :rofl: Arnie Pie you're on a roll today! I basically take 1 350mg capsule at night, with a daytime dose when I remember (I often forget my...
    Post by: Allele, Apr 21, 2018 in forum: Pain and Inflammation
  10. Allele
    Post

    Myalgia, amitriptyline and alternatives

    I can't take any NSAIDS at all, and have a good deal of constant body-wide pain that drives me nuts. I am currently trialling, with surprising...
    Post by: Allele, Apr 20, 2018 in forum: Pain and Inflammation
  11. Allele
    Post

    NIH Reddit AMA Immediate Action: Please go Upvote

    His reply just now: [ATTACH]
    Post by: Allele, Apr 20, 2018 in forum: Other health news and research
  12. Allele
    Thread

    NIH Reddit AMA Immediate Action: Please go Upvote

    Please go upvote the questions about ME/CFS so they stay visible: (start with www.)...
    Thread by: Allele, Apr 20, 2018, 3 replies, in forum: Other health news and research
  13. Allele
    Post

    USA: NIH National Institutes of Health news - latest ME/CFS webinar 14 Jan 2025

    Please everyone go upvote the questions about ME/CFS so they stay visible! Also, many thanks to whomever has been giving them gold!
    Post by: Allele, Apr 20, 2018 in forum: News from organisations
  14. Allele
    Post

    I support Carol Head for CFSAC! - Solve ME/CFS Initiative

    I think Carol Head is great, but after years of watching CFSAC do worse than nothing, and become increasingly hostile to patients, I've rather...
    Post by: Allele, Apr 20, 2018 in forum: Advocacy Projects and Campaigns
  15. Allele
    Post

    David Tuller: Trial By Error: My Berkeley-Backed Crowdfunding Campaign

    Does anyone have the capacity on SM to bring this to the attention of Hillary Johnson, Laura Hillenbrand, Howard Bloom, Stuart Murdoch, Lleywellyn...
    Post by: Allele, Apr 20, 2018 in forum: General ME/CFS news
  16. Allele
    Post

    Wesselys Mental Health review could also replace Mental Capacity Act

    Other than making the general population accustomed to/afraid of having their agency removed by the state, I can't understand why a system would...
    Post by: Allele, Apr 20, 2018 in forum: Other health news and research
  17. Allele
    Post

    New MRT Imaging Biomarkers and Treatment With Kinetic Oscillatory Stimulation (KOS) in Nasal Cavity for ME/CFS, underway, Karolinska University

    they are for me :thumbup:
    Post by: Allele, Apr 20, 2018 in forum: ME/CFS research
  18. Allele
    Post

    Blog: So I got married, Gary Burgess

    :emoji_champagne_glass::heart:All the best to both of you for a rich and joyful life together :heart::emoji_champagne_glass:...
    Post by: Allele, Apr 20, 2018 in forum: General ME/CFS news
  19. Allele
    Post

    A couple-based psychological intervention for chronic fatigue syndrome [In progress, April 2018]

    The ignorance and bigotry of this approach is so blatant if you reread it while substituting the word "cancer" for "CFS".
    Post by: Allele, Apr 20, 2018 in forum: Psychosomatic research - ME/CFS and Long Covid
  20. Allele
    Post

    New MRT Imaging Biomarkers and Treatment With Kinetic Oscillatory Stimulation (KOS) in Nasal Cavity for ME/CFS, underway, Karolinska University

    I wonder what made them think a vibrating ballon catheter for treating rhinitis would effectively treat ME? I mean, that would be great, but, erm,...
    Post by: Allele, Apr 19, 2018 in forum: ME/CFS research
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