They start off in the background section talking people with psychotic diseases having poorer physical health than average and that is a clear and...
Alcohol intake, drug use and smoking all involve a behavioural component which, surprise, means changing behaviour can help. Being in extreme...
So where is the research to show that people with ME, CFS or longcovid are lacking in motivation to get well again? If people who have not...
I can't find the post again, sorry but someone said they are feeling angry these days. I feel like that too and I realised it is because these...
Moderate exercise is just as bad for ME as any other. There is no blanket level of exercise that is good or bad for people with ME. The point they...
So they are saying ME is not post viral despite the fact it was named for a disease which was a long term consequence of epidemics. How ignorant...
That will be exactly like MS then? Though it is called remission and doesn't last. And where did he get the impression it is usually not...
You have captured the basic, dreadful, unscientific ghastliness of what we face. "Current physiological illnesses" indeed! They do not believe ME...
I get swelling. My stomach looks as if I am pregnant and goes hard as a drum and I put on about 4 lbs. I also get swelling in my throat, lips and...
From memory, a researcher from the University of Hawaii worked on this but also the NIH or someplace like that. One of the problems was he called...
So longcovid is real because it is a set of symptoms common to patients who all had the same infection. That would be a description of the Royal...
The virus will never go away now so the hope is that vaccines will help stop people getting infected so the likelihood of meeting someone...
I am not convinced there was not enough good quality proposals put to the MRC. Derek Pheby asks for money to ask people with ME what symptoms they...
Definitions are useful up to a point but mainly for legal reasons, not everyday life. We all know what is a lorry and what is a car but a...
A friend has something that could be called this. He fell down a flight of stairs about 10 years ago, banging his shoulder against a wall on the...
Medicine can only use anecdote as a starting point for further investigation. In the 70s anecdote suggested strongly that plentiful vitamin C in...
Again my memory has failed me, but I believe that there was a discussion on an ME forum about whether having another infection can make ME a bit...
I've remembered that its generic name was mefenamic acid. Ridiculous that you had all that pain but no one did a laparoscopy to actually look to...
I don't remember the MRC ever being much use to us, at least I was never excited by anything they came up with, I would remember that. At one...
In the 80s there was a category for getting free prescriptions which was "unable to leave house without help". This with the proviso as in...
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