A problem I have is that when I am talking to medical professionals I sound much, much better than I really am. It is completely involuntary. I...
Ponstan was the name of an NSAID which they used for period pains and abdominal pains as it probably helped with endometriosis. It was also...
There has to be a plausible theory linking the symptoms to the postulated cause and that is the bit where FND falls down. They simply claim the...
That is very interesting. It explains what I have always thought - that onset has to be sudden for a disease like ME, at one point the damage is...
Sean, that is so true. I a truly afraid for my family and all those people going blindly on ignoring this until it finally gets them. We are...
My mother became very fatigued and anxious after a bout of flu and was reassured that it was PVS for 3 months until she collapsed and they...
My grandson had undiagnosed autism and became severely anxious about mixing with people. CBT did help him quite a lot. He was disgusted with...
They spend all their time doing overviews which simply push the fact that FND is a proper medical diagnosis like RA or MS. Repetition designed to...
"Bothered" is a weasel word. It does not acknowledge that a symptom is really happening, it is a word used in everyday language as a trivial...
The neurological symptoms are not typical of PVS. PEM is a shorthand way of describing something that is going on and is not very accurate. A...
The situation is worse than that. Due to their stunning success reducing fatigue in CFS (!) the BPS brigade, including some of our well known...
I have mentioned before that my husband had PVS after flu in the days before we knew anything about ME and never had any suspicion we could have...
There is more money available now than there was when everyone called it ME and agreed on what it was. If any money had been available for...
Eminence based medicine.
I have no problem with doctors asking if someone is having problems in life or any problems with their mental health. It is when they do not...
In the original FND papers Jon Stone said that an important clue was a woman who had an attentive husband come with her.
It bears repeating that doctors treating myotonic dystrophy complain that it is missed too often by neurology departments. When someone obviously...
Samuel, the problem is that most of your questions have no answers because there is not enough known about ME. The differences in people with ME...
Surely the only point to categorizing patients is to work out which treatments lead to recovery in each type. Since CBT is the answer to...
The only way to make the BPS model more scientific is to find develop a testable theory of how it impacts the body. The FND work is trying to do...
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