MS and diabetes both show differences because doctors follow a lot of different patients over the years and see how the disease progresses. They...
I keep choking over neurological problems, problems with exercise and widespread pain, the very symptoms dropped from ME when it morphed into CFS
Behan did studies on muscle biopsies and found problems with mitochondrial function. At the time, Wessely had published a paper which found...
It must be remembered that there is a continuity from the RFH outbreak to today. When I joined the ME Association in 1985 Dr Ramsay was still...
I think it could work as there is often not any sensation in the ears. I went to HBOT for 25 years and it was not a cure by any means but it...
Yes, I feel that about pain studies too. There is a general assumption that the way students react to having their hands in ice cold water is the...
It would be more useful to look at how the GP reacts to the first patient consultation to see if there is a pattern. Which blood tests are done?...
Not everyone will be able to take the vaccine. Some ME patients may be in this group. Their best chance with this virus is if as many people as...
I will be getting the vaccine when offered. Any side effects are better than getting the bug and it should make any infection less serious if I do...
I have never heard that ME has "exercise-induced DRG pro-nociceptive molecules gene overexpression" Diagnosing FM and ME is very lax. One doctor...
If a treatment is shown to be effective for enough people it will happen naturally. The reason all their "cures" are not well accepted is not lack...
The early CFS people, like her, did not know about, or did not consider, energy problems or any of the earlier work on ME.
After orthopaedic surgery, many patients are reluctant to take adequate pain relief. When it is explained to them that taking pain killers will...
Thank you again for discussing this, it is a vital thing for us. To state the case very baldly, the medical profession can't believe, don't know...
I am not sure I understand the idea of using a wide net. The PACE trial was examining a treatment so any question of whether they were looking at...
That is not what I meant, I was talking about day to day medicine. Doctors may not know much about ME but I should have been able to go to see a...
I have been thinking about finding symptoms and what to do and I realised that there is a fundamental problem underlying it all, which will come...
I have read that Michael Sharpe was part of the group at the CDC who defined CFS and Wessley was at the original conference.
The research into polio was held up for decades because the leading researcher in the US did not believe in infectious organisms. I think Dr...
There was talk about doing a study like this to see if mono ME was the same as enteroviral ME when CFS showed up and everything fell apart.
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