Evidence based medicine people who feel anecdotal evidence is just as good as a proper trial or that you don't need to do a trial of a parachute...
yes, I think PEM is being used to mean exhausted after exercise which is not the way it is used in ME. The tide is against us so maybe it is time...
It is vital to make the distinction between immediate onset consequences after doing something and ones which are delayed. It is also important...
Remember, Jon Stone's paper on FND in 2008 was written in collaboration with Michael Sharpe when they were both at Edinburgh University.
Years ago now, I watched a TV program fronted by Dr Miriam Stoppard because I knew she would be talking about ME. It was horrendous, completely...
Many people with MS are on antidepressants, or at least they were before MS drugs became available. I think they were handed out the way they are...
I was at the dentist today, finally after losing a filling the first week of lockdown last year. We were talking about the vaccines and they had...
If you have neurological symptoms you should have an MRI. It has revolutionised the early diagnosis of MS and is vitally important because there...
Diabetics monitor their blood glucose a lot so the normal levels in blood are well worked out. Healthy people may have surges after meals but it...
A while ago now, there was a case in the US with involving a boy in his early teens who was given to foster parents. The ME community collected...
If some of the patients were not told the drug could cause problems yet experienced them it means that the drug is causing them not the...
I know who is delusional.
They claim that PACE looked for harms but found none so GET is safe so they do not deny that one of the aims was to see if the treatments were...
The findings from the Workwell experiments strongly suggest that the aerobic energy system does not work as well as it should in people they have...
Ron Davis described ME as the last, great, medical mystery of the 20th century. Instead of being treated as a mystery disease that should be...
That ME has many neurological symptoms is too often forgotten these days. Except by those determined to rediagnose all of us as having FND.
This sort of collapse after exertion is very distressing and disabling and seems to be what people with longcovid and a lot of other illnesses...
After 20 years of invisible illness I developed neurological symptoms that were embarrassingly obvious. At last, I thought I would be taken...
The doctor discussing sexual function problems gives the patient permission to talk about such private things, also being told it is a result of...
I tried to explain these recent FND papers to my husband and it was impossible. What exactly do they think is the cause of FND? Do they think that...
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