In those faraway days it was difficult to know what was going on in the background. In even further away days in my microbiology lecturer spoke...
I know what you mean. It is infuriating when someone says that especially if they say they had it but they got better because of X and because...
I am getting increasingly worried by the constant use of PEM as a symptom of longcovid. They do not define it anywhere so I think it most likely...
I'd much rather it wasn't catatonia, though I had it dismissed as that and called a classic sign of hysteria. I had wondered if it was like...
This symptom of ME should be better known as it is devastating. Tom Kindlon shared the story of an Irish patient who had a terrible time in...
It is the way they use symptoms we talk about but have no understanding of what they are. It is infuriating the number of people who say PEM but...
It is complicated by the fact that Action for ME is the go to organisation. Sharpe being based at Edinburgh and leaving at least one acolyte, Jon...
Invisible Woman said ME has been described as being able to lift a bag of potatoes over your head once but collapse trying to lift a spoon to...
It leaves out the most important question. Many children experience early life trauma but do not get MS so the question of why some people get MS...
Possibly off topic. I have known a lot of people with MS and most of them feel that a period of stress brought on their first major attack. It was...
I can't read the article, but does this not suffer from the same problem that Jonathan Edwards pointed out in the physical signs for FND. People...
A great song and dance was made about ME being the latest example of millennium fever with all of us going mad because it was 1999. Not a word...
We can't do moderate exercise either and she must know that, so it sounds like she is the one who is misunderstood when it is actually irrelevant...
So they do not use functional to mean "software" but actually "hardware". This only goes to show that everything is not known about the physical...
She said that exercise was good for everything and it has been pointed out to her that there are some conditions that exercise is not good for....
Talking about longcovid on another thread, one of the problems with the BPS approach is that they ignore the patient's concerns for what they...
This happened to me when I was in a neurology ward. I was so naive in those days I was shocked by it. No one wanted to talk about the neurological...
I think impact scales do not take into account the way you can struggle and still do things if you are feeling worse with ME. There is a point...
This whole area is typical of the way modern life has become full of agendas rather than straightforward truth. If a doctor finds that his...
Especially nowadays when the tests for fibro have become so loose they are almost meaningless. (Doctors complained about it at the time.) More...
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