A belief that has resisted the onslaught of Long Covid where most patients have reported doing exactly that, and more. The main problem with...
Typo aside, those are very different things. Coping is not treating, and pacing is coping in the same way as not buying stuff is coping with...
So, aside from the shortness of breath type, which has no counterpart, those amount to ME/CFS, fibromyalgia, and the last one would typically be...
That would indeed be the very definition of recovery. But this is really, really bad, and also known to us for many years, reported by millions,...
There is often a display of the multiple dimensions (the spider web thing) and they usually find that on the mental axis pwME are fine. Which,...
NIHR hosted a webinar on Long Covid Kids, titled "What are the next steps for Long COVID research?". Given their funding of the ClocK study, which...
:wtf::banghead::banghead::banghead::banghead::banghead::banghead::banghead::banghead: FFS this is just fanatical at this point. If we're talking...
Yeah I have seen that there seem to be changes in opinions over this, unfortunately warming up is not an option for me. Although it may have...
Indeed they do. This has clearly been a pattern with this type of research, and especially this group of, uh, "researchers". Along with the...
Ah! I've seen her stuff, follow her on twitter. She spends a lot of time chasing after this kind of fraud, obvious copy-pastes that are hard to...
I see what you did there. LMAO. Early-onset hereditary isolated non-neurogenic orthostatic hypotension in a Swedish family, 2023, Jan Fagius et al
MEAction has announced that they will be hosting the Body Politic community, which was one of the main nexus from which Long Covid advocacy, and...
Unfortunately, very small beans. Individual projects requesting up to $300,000 will be considered. The estimated total available budget related...
It's missing pretty much all morbidity from discriminated chronic illnesses so, yeah, way larger. If they can miss so many dangerous diagnoses,...
Burden of serious harms from diagnostic error in the USA https://qualitysafety.bmj.com/content/early/2023/07/16/bmjqs-2021-014130 Ironically,...
The first part is a nightmare. The risks and disability are real, but healthcare aren't concerned so they keep doing nothing. And the last part is...
WTH is even happening here? This is not ambiguous or hard to understand. They are explicitly refusing to correct an incorrect number published in...
Definitely, but this problem is massively amplified in a context of open label trials with biased subjective outcomes that mostly amount to "we're...
Clearly the strategy. Delay long enough and you can simply say that it's all in the past, even if you are responsible for that delay in the first...
Unnoticed is a very passive voice for something that is not a passive thing to do. Very much like the "invisible illness" language. It's not...
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