And add to that brain drain and loss of institutional memory. It doesn't even need to fully disable someone, mild brain fog is enough to bring...
The size and coverage of the LC awareness day have frankly been not much bigger than our May 12. Barely any media coverage. It's basically...
Philosophy is generous. Blathering is more like it. To be fair, a lot of philosophy is just blathering, but this is as blather as blather gets....
So, time. Ascribing any effect here is simply not valid. Even at 12 months it should take a huge amount of evidence to give credit to some...
It actually shows that no one can tell the difference either way, and that the old distinction is about as scientific as the concept of race,...
The same pattern keeps holding up about everything psychosomatic: it's worse in context, and the more context you add the worst it gets....
We have actually reached the stage where chatbots, we're not quite at AI yet, actually make more sense than this garbage. Even though they often...
The most impactful thing would probably to loop in the long hauler advocates who understand the whole well enough to see how it affects them....
I'm noticing the same. Even locally, almost every mention in the media of LC only ever get bots and trolls in replies. It's a huge problem, and a...
This is actually significant. People often forget that labor is a market. Wages go up and down based on supply and demand. When there are fewer...
Sounds a lot like the patients are lowering their expectations of what is normal and simply endure it. When you are used to 9/10 energy and now...
Most studies don't ask, I think only patient-lead studies did, but in the few that did it was the most prevalent symptom or issue. Which really...
The main takeaway from patient testimonies is how truly horrible the gaslighting and ignorance (feigned or legitimate) from doctors is, how...
There many good things in there. And good people. From the looks of it, it's just the usual power struggles behind closed doors. Many efforts...
I've thought about the lack of whistleblowers in this and frankly the fact that there hasn't been a single one ever puts that possibility to rest....
SCAM Bit on the nose. But really, there is zero difference between referring people to any of those alternative medicines and the BPS approach....
They used a survey of their clients, who signed a contract saying they can only say that it helped. Oh, and the data were collected by a company...
CFS/MECFS The attention to details is very inspiring.
There is another tweet thread from Simon mentioning updates this week. And it has fighting words. Can't really do better as an advocate than Simon...
GI GO
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