I'm not sure which charities have the capacity to do this.
Partners are only "laterally" involved, eg asked to "advertise" the questionnaire to members etc. They won't be involved in decision-making.
Yes, the ME PSP. The Steering Group haven't started the process of signing up partners etc yet, but the JLA Facilitator mentioned at a Seed Group...
I see that your response is still there. Thank you so much for your comments on this blog. I understand that Cochrane are keen to be a partner...
How can one part of Cochrane leave the Larun Exercise review on their site, without clear warning, when they are producing blogs "To help you...
Are there other disease/illness groups where the main clinician/researchers are so negative about peer-support groups and relevant charities?
Anyone interested in this role? Apply to be a ‘Cochrane UK Consumer Champion’ [IMG] We are inviting applications from people who would like to be...
@Caroline Struthers
Health is devolved to scottish (and I think Welsh) parliaments. Scotland is not covered by NICE, not sure re Wales. @adambeyoncelowe @Gecko
I have been surprised by the number of people with ME, yet not necessarily POTS who find sitting with their feet up much less tiring than having...
Other than the last sentence of the conclusion, which seems a bit odd, it does seem useful. "With the added perspective of large-scale studies,...
I have a friend who is a doctor who has endometriosis. I wonder what docsnet is saying about this.
In some ways I am "fortunate" that the cause of my pain has become increasingly visible over the last 15 or so years. My structural spinal...
I suspect that Nina M is working with Frances Williams who works with twins research at King's, and that Pariante got added due to his work on...
Interesting that Dr Michael Peel is a GP at the Hurley Group, which is the same Group where Gerada is based. "The picture reminds me of patients...
@PhysiosforME !!!
I've just had a coffee, might need something stronger in a bit. Is this some kind of alternate Universe?
This lady must have something organic and neurological going on to cause the dystonia in her hands and foot. Item is near the end, sorry forgot to...
I wonder if modelling the Camelford incident in Cornwall would indicate hysteria as Wessely stated or poisoning of water supplies. (Aluminium salt...
What a waste of 4 million Euros.
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