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  1. MEMarge
    Post

    Pacing - definitions and sources of information

    Hi @Hutan, great work. My only comment on initial read thro was that PEM is often stated as starting within 12 - 48 hours, rather than 24. My...
    Post by: MEMarge, Feb 11, 2020 in forum: Monitoring and pacing
  2. MEMarge
    Post

    ME Public Engagement Event - Norwich, Feb 2020

    InvestinME Research Retweeted [IMG] Quadram Institute @TheQuadram Simon Carding from @CardingLab kicks off our event with @Invest_in_ME on our ME...
    Post by: MEMarge, Feb 11, 2020 in forum: General ME/CFS news
  3. MEMarge
    Post

    Updated: What is ME? Video

    Thanks Adam, another excelllent video.
    Post by: MEMarge, Feb 7, 2020 in forum: Advocacy Projects and Campaigns
  4. MEMarge
    Post

    Podcast: CBT for Chronic Fatigue Syndrome: Dr Lucy Maddox, Trudie Chalder

    I do remember flicking through it a couple of years ago and it being as dreadful as expected. I had bought it in the early days at huge discount...
    Post by: MEMarge, Feb 5, 2020 in forum: Psychosomatic news - ME/CFS and Long Covid
  5. MEMarge
    Post

    Podcast: CBT for Chronic Fatigue Syndrome: Dr Lucy Maddox, Trudie Chalder

    This is because it features on the "Reading Books well on Prescription" list: https://napc.co.uk/wp-content/uploads/2017/09/Reading-well.pdf P14...
    Post by: MEMarge, Feb 5, 2020 in forum: Psychosomatic news - ME/CFS and Long Covid
  6. MEMarge
    Post

    Left out (Norwegian documentary on ME)

    This is great to share with interested frinds and family
    Post by: MEMarge, Feb 3, 2020 in forum: General ME/CFS news
  7. MEMarge
    Post

    Nuffield Department of Population Health Host Fake News Event

    Thanks for this @spangle and welcome to the Forum. Interesting at about 46 mins that the speaker comments that the Andrew Wakefield paper was...
    Post by: MEMarge, Feb 3, 2020 in forum: Other health news and research
  8. MEMarge
    Post

    Cortisol levels in Chronic Fatigue Syndrome and atypical depression measured using hair and saliva specimens, 2020, Cleare/Chalder/others

    Presumably, getting it printed in the Journal of Affective Disorders aligns with the King's College view that CFS is a mood disorder.......
    Post by: MEMarge, Feb 1, 2020 in forum: Psychosomatic research - ME/CFS and Long Covid
  9. MEMarge
    Post

    'Pacing for people with M.E.' Action for ME booklet - revised and updated January 2020.

    Thank you @Action for M.E.
    Post by: MEMarge, Jan 30, 2020 in forum: Monitoring and pacing
  10. MEMarge
    Post

    Seat for cooking

    I use an old office chair for dishwasher loading/emptying and if I need to stir things on hob. Also when putting away online food order. My...
    Post by: MEMarge, Jan 30, 2020 in forum: Home adaptations, mobility and personal care
  11. MEMarge
    Post

    O'Dowd-Crawley early intervention study

    Surely they would assume that this small band of militant activists who do nasty things like FOI requests and say mean things to/about...
    Post by: MEMarge, Jan 30, 2020 in forum: Psychosomatic research - ME/CFS and Long Covid
  12. MEMarge
    Post

    Pathogens associated with triggering ME/CFS - discussion thread

    My daughter developed ME after viral labyrinthitis. The specific symptoms of dizziness/nausea etc went after 4-6 weeks, but she never recovered...
    Post by: MEMarge, Jan 28, 2020 in forum: Possible causes and predisposing factor discussion
  13. MEMarge
    Post

    Blogpost by Super Pooped (Hannah Radenkova): What no one tells you about being Housebound

    or the monthly salary and the respect of doing a good (paid) job etc
    Post by: MEMarge, Jan 26, 2020 in forum: General ME/CFS news
  14. MEMarge
    Post

    'Pacing for people with M.E.' Action for ME booklet - revised and updated January 2020.

    My daughters limits have not widened. I wonder if this can occur when people who have been trying told to "push through" by...
    Post by: MEMarge, Jan 26, 2020 in forum: Monitoring and pacing
  15. MEMarge
    Post

    BABCP Spring Workshops and Conference KCL 16th to 17th April, 2020

    I don't know about 'old wine in new bottles'; I think it's been pretty well corked. To me it has definitely turned to vinegar.
    Post by: MEMarge, Jan 25, 2020 in forum: Psychosomatic news - ME/CFS and Long Covid
  16. MEMarge
    Post

    A Trial of ME - Elizabeth's Story. #MEAction article, November 2019

    This trial and it's subsequent expanded write-up as a "Health Technology Assessment" seems to be a very significant lead up to PACE. I'm assuming...
    Post by: MEMarge, Jan 25, 2020 in forum: Psychosomatic theories and treatments discussions
  17. MEMarge
    Post

    'Pacing for people with M.E.' Action for ME booklet - revised and updated January 2020.

    Thanks, yes I meant Pete, have changed above
    Post by: MEMarge, Jan 24, 2020 in forum: Monitoring and pacing
  18. MEMarge
    Post

    'Pacing for people with M.E.' Action for ME booklet - revised and updated January 2020.

    It is also Psych speak for those with depression, low motivation...
    Post by: MEMarge, Jan 24, 2020 in forum: Monitoring and pacing
  19. MEMarge
    Post

    'Pacing for people with M.E.' Action for ME booklet - revised and updated January 2020.

    The MEAction survey shows results for the individual clinics. The Bristol Service for adults had one of the largest responses (alongside...
    Post by: MEMarge, Jan 24, 2020 in forum: Monitoring and pacing
  20. MEMarge
    Post

    'Pacing for people with M.E.' Action for ME booklet - revised and updated January 2020.

    Pete Gladwell was the physio involved in the dreadful pre PACE Hazel O'Dowd trial...
    Post by: MEMarge, Jan 24, 2020 in forum: Monitoring and pacing
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