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  1. MEMarge
    Post

    The Prevalence of Pediatric Myalgic Encephalomyelitis/Chronic Fatigue Syndrome in a Community-Based Sample (2020) Jason et al.

    I totally agree @Denise. When a youngster cannot remember how to do the A-level Maths that she had known inside out a couple of months earlier...
    Post by: MEMarge, Jan 24, 2020 in forum: ME/CFS research news
  2. MEMarge
    Post

    'Pacing for people with M.E.' Action for ME booklet - revised and updated January 2020.

    It sounds about as dreadful as I feared .... Yet they wonder why people are wary of them as a charity. I do wish they would stop the "boom and...
    Post by: MEMarge, Jan 24, 2020 in forum: Monitoring and pacing
  3. MEMarge
    Post

    Dr Myhill’s complaint to GMC about PACE authors.

    As I understand it, she is hoping that the GMC will investigate the PACE authors, re their flawed research. Sadly the number of MPs supporting...
    Post by: MEMarge, Jan 20, 2020 in forum: General ME/CFS news
  4. MEMarge
    Post

    News from Aotearoa/New Zealand and the Pacific Islands

    Happy New Year to all those in NZ and Aus etc.
    Post by: MEMarge, Dec 31, 2019 in forum: Regional news
  5. MEMarge
    Post

    How are behavioural interventions delivered to children (5–11 years old): a systematic mapping review - Brigden, Crawley et al Dec 2019

    "What this study adds? This review highlights intervention characteristics to consider when designing and delivering interventions for children...
    Post by: MEMarge, Dec 30, 2019 in forum: Psychosomatic research - ME/CFS and Long Covid
  6. MEMarge
    Post

    Psychosomatic therapy for patients frequently attending primary care with MUS,the CORPUS trial: study protocol for an RCT-Wortman et al 2019

    Yes, I would have taken the CR and then a couple of letters after the R.
    Post by: MEMarge, Dec 30, 2019 in forum: Other psychosomatic news and research
  7. MEMarge
    Post

    PEM is associated with greater symptom burden and psychological distress in patients ... with CFS (2019) May, Fletcher, Klimas et al.

    @Medfeb do you think there is any point in contacting Nancy Klimas about this, as it is being used to promote psych-based approaches?
    Post by: MEMarge, Dec 23, 2019 in forum: Psychosomatic research - ME/CFS and Long Covid
  8. MEMarge
    Post

    UK Genome Wide Association Study (GWAS) project - draft website goes live, feedback sought on recruitment plan, and updates

    Probably unreasonable to expect this before the New Year.
    Post by: MEMarge, Dec 23, 2019 in forum: ME/CFS research news
  9. MEMarge
    Post

    FITNET-NHS Esther Crawley - 5th protocol out now

    I guess the good news from this is that the "Harms from EC and GET message" is getting through to parents, so their study recruitment has slowed.
    Post by: MEMarge, Dec 23, 2019 in forum: Psychosomatic research - ME/CFS and Long Covid
  10. MEMarge
    Post

    FITNET-NHS Esther Crawley - 5th protocol out now

    Funding is from NIHR. EC seems to have a never-ending pot available. "This trial has been designed and delivered in collaboration with the...
    Post by: MEMarge, Dec 23, 2019 in forum: Psychosomatic research - ME/CFS and Long Covid
  11. MEMarge
    Post

    BMJ : The need for speed: observational study of physician driving behaviors Dec 2019

    Could this be their Christmas equivalent of an April fool? I have vague memories of a doctor friend saying they do a spoof article at Christmas...
    Post by: MEMarge, Dec 22, 2019 in forum: Other health news and research
  12. MEMarge
    Post

    Patients with ME/CFS and chronic pain report similar level of sickness behavior as individuals injected with bacterial endotoxin... 2019, Jonsjö et al

    Thanks for reading/assessing this @strategist and @Trish. It is very disappointing to see the Karolinska Inst involved with this kind of garbage....
    Post by: MEMarge, Dec 21, 2019 in forum: ME/CFS research
  13. MEMarge
    Post

    ..Understanding the Role of Psychological Processes in Disease Development, Maintenance, and Treatment: The 3P-Disease Model, 2019, Wright et al

    This 3P really frustrates me and i am regularly disappointed when I hear it brought up again. I get the Predisposing eg a couple of genes that...
    Post by: MEMarge, Dec 15, 2019 in forum: Other psychosomatic news and research
  14. MEMarge
    Post

    ME/CFS services in the United Kingdom

    Info on Systrom Pyridostigmine trial https://www.clinicaltrials.gov/ct2/show/NCT03674541 Meeting abstract, 2016...
    Post by: MEMarge, Dec 15, 2019 in forum: UK clinics and doctors
  15. MEMarge
    Post

    Orthostatic intolerance

    Have you looked at the POTS UK site. It may be worth asking to be referred to a relevant cardiology specialist to see if there are alternative...
    Post by: MEMarge, Dec 15, 2019 in forum: Cardiovascular and exercise physiology (CPET)
  16. MEMarge
    Post

    An Alzheimer treatment: lecanemab (Biogen)

    A couple of quotes from this really resonated with me: “it’s difficult to break into a field with so many strong voices supporting a single...
    Post by: MEMarge, Dec 10, 2019 in forum: Other health news and research
  17. MEMarge
    Post

    Assessment and management of recurrent abdominal pain in the emergency department, 2019, Daniels et al

    It's another piece from Joleen, on the NICE guideline development committee! "To suggest that any symptomatic experience is purely biomedical is...
    Post by: MEMarge, Dec 8, 2019 in forum: Other psychosomatic news and research
  18. MEMarge
    Post

    Assessment and management of recurrent abdominal pain in the emergency department, 2019, Daniels et al

    So sorry to hear about this @Sly Saint
    Post by: MEMarge, Dec 8, 2019 in forum: Other psychosomatic news and research
  19. MEMarge
    Post

    Paediatric chronic fatigue syndrome patients’ and parents’ perceptions of recovery - Harland, Crawley et al 2019.

    Looks like another waste of ?PhD funding. There is also another paper under review...
    Post by: MEMarge, Dec 7, 2019 in forum: Psychosomatic research - ME/CFS and Long Covid
  20. MEMarge
    Post

    Paediatric chronic fatigue syndrome patients’ and parents’ perceptions of recovery - Harland, Crawley et al 2019.

    How on earth can they say this: Conclusion Some parents and children "struggle to define what would constitute complete recovery." However, signs...
    Post by: MEMarge, Dec 7, 2019 in forum: Psychosomatic research - ME/CFS and Long Covid
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