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  1. MEMarge
    Post

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    I don't think he is interested in dialogue anymore with anyone other than his new BPS friends.
    Post by: MEMarge, Apr 15, 2021 in forum: Long Covid news
  2. MEMarge
    Post

    “She used to be Tigger and then she was Eeyore”: young people, CFS/ME, exploring predictors of recovery, 2021, Clery, Crawley et al

    Yes, that struck me as very odd and a basic flaw. Is the first author a surgeon, MBBS? Maybe she was hoping to get something published from the...
    Post by: MEMarge, Apr 14, 2021 in forum: Psychosomatic research - ME/CFS and Long Covid
  3. MEMarge
    Post

    George Monbiot on ME/CFS, PACE, BPS and Long Covid

    You are a star @Sly Saint
    Post by: MEMarge, Apr 14, 2021 in forum: General ME/CFS news
  4. MEMarge
    Post

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    @PhysiosforME thanks for your Tweets re Paul Garner. I don't think he is an Immunologist. His field is more Infectious disease/epidemiology.
    Post by: MEMarge, Apr 9, 2021 in forum: Long Covid news
  5. MEMarge
    Post

    NICE ME/CFS guideline - draft published for consultation - 10th November 2020

    Thank you, that is very reassuring.
    Post by: MEMarge, Apr 8, 2021 in forum: 2020 UK NICE ME/CFS Guideline
  6. MEMarge
    Post

    Clinical trial outcome measures of improvement and recovery in ME/CFS - which ones are useful? Discussion thread

    Totally agree with you Trish. Being able to do more is what my daughter longs for. She would be happy with more physical or cognitive function....
    Post by: MEMarge, Apr 8, 2021 in forum: Other research methodology topics
  7. MEMarge
    Post

    United Kingdom: News from Forward-ME Group

    Good to see that Baroness Scott is a member, though not at the March meeting. I am encouraged by this news, ie the potential change of structure...
    Post by: MEMarge, Apr 8, 2021 in forum: News from organisations
  8. MEMarge
    Post

    The high mental health burden of “Long COVID” & its association with on-going physical & respiratory symptoms in..., 2021, Naidu et al

    @Andy you do seem to be unearthing a huge amount of BPS today!
    Post by: MEMarge, Apr 7, 2021 in forum: Long Covid research
  9. MEMarge
    Post

    6-month neurological and psychiatric outcomes in 236 379 survivors of COVID-19: a retrospective cohort study..., 2021, Taquet et al

    Four out of five are based in Psychiatry Depts in Oxford.
    Post by: MEMarge, Apr 7, 2021 in forum: Long Covid research
  10. MEMarge
    Post

    News from Cochrane

    Who's attending? Registration free for patients/carers/advocates. ETA: I've registered
    Post by: MEMarge, Apr 7, 2021 in forum: News from organisations
  11. MEMarge
    Post

    Who is Simon Wessely?

    Thanks for the above transcription @Lucibee. I really didn't want to listen, but it's interesting to read this.
    Post by: MEMarge, Apr 2, 2021 in forum: Psychosomatic news - ME/CFS and Long Covid
  12. MEMarge
    Post

    CBT and CFT for Chronic Pain, 2021, Hadley and Novitch

    For some of these people access to physiotherapy or similar when their pain is at an earlier stage, with appropriate exercises and follow-ups...
    Post by: MEMarge, Apr 2, 2021 in forum: Other psychosomatic news and research
  13. MEMarge
    Post

    Closed Recruiting: Measuring the Impact of (ME/CFS) on the Patient and Family using the EQ5D and FROM-16 questionnaire

    Last day to complete this research by Dr Nina Muirhead Impact on patient and family of having ME.
    Post by: MEMarge, Mar 31, 2021 in forum: Recruitment into current ME/CFS research studies
  14. MEMarge
    Post

    NICE ME/CFS guideline - draft published for consultation - 10th November 2020

    I totally agree, but I don't think that's going to happen!
    Post by: MEMarge, Mar 31, 2021 in forum: 2020 UK NICE ME/CFS Guideline
  15. MEMarge
    Post

    NICE ME/CFS guideline - draft published for consultation - 10th November 2020

    There is now a mention on the 2007 GDL page: https://www.nice.org.uk/guidance/cg53 "NICE is aware of concerns about graded exercise therapy...
    Post by: MEMarge, Mar 31, 2021 in forum: 2020 UK NICE ME/CFS Guideline
  16. MEMarge
    Post

    NICE ME/CFS guideline - draft published for consultation - 10th November 2020

    Couldn't agree more! Another kick in the teeth for people with ME and their families, having to wait four more months before they can start to...
    Post by: MEMarge, Mar 29, 2021 in forum: 2020 UK NICE ME/CFS Guideline
  17. MEMarge
    Post

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Didn't NICe describe it as Post Exertional Symptom Exacerbation?
    Post by: MEMarge, Mar 29, 2021 in forum: Long Covid news
  18. MEMarge
    Post

    Weird NHS ME clinic referral form

    Wonder how much these forms will change after the new NICE Guidelines?
    Post by: MEMarge, Mar 29, 2021 in forum: UK clinics and doctors
  19. MEMarge
    Post

    CONservative TReatment of Appendicitis in Children: a randomised controlled feasibility Trial (CONTRACT) , Hall, Crawley et al, 2021

    So, for the ones who were originally allocated to antibiotics, 28 8 had the operation (4 perforated, 4 acute appendicitis) 19 were discharged...
    Post by: MEMarge, Mar 28, 2021 in forum: Other health news and research
  20. MEMarge
    Post

    CONservative TReatment of Appendicitis in Children: a randomised controlled feasibility Trial (CONTRACT) , Hall, Crawley et al, 2021

    From the full HTA report, Results: "Of the 28 participants randomised to appendicectomy, 27 received the intervention. Seventeen were found to...
    Post by: MEMarge, Mar 28, 2021 in forum: Other health news and research
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