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  1. MEMarge
    Post

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Mention of Long Covid and ME brief but good. Basically saying people with ME have been neglected. Long Covid hs shown that a virus can lead to...
    Post by: MEMarge, Feb 25, 2021 in forum: Long Covid news
  2. MEMarge
    Post

    UK: Disability benefits (ESA and PIP) - news and updates 2021 - 2022

    This is such good news.
    Post by: MEMarge, Feb 22, 2021 in forum: Work, Finances and Disability Insurance
  3. MEMarge
    Post

    British Medical Association article: Long Covid - we've been here before, 2021, J. Trueland

    Maybe rest is their version of convalescence, to fit in with their soundbite?
    Post by: MEMarge, Feb 16, 2021 in forum: Long Covid news
  4. MEMarge
    Post

    How to learn skilled communication in primary care MUS consultations: a focus group study, Houwen et al, 2021

    I doubt that there will be a rush of GPs keen to pursue this training.
    Post by: MEMarge, Feb 12, 2021 in forum: Other psychosomatic news and research
  5. MEMarge
    Post

    The biology of coronavirus COVID-19 - including research and treatments

    Interesting research article from Berkeley Uni https://publichealth.berkeley.edu/covid-19/can-hepatitis-c-drugs-help-remdesivir-fight-covid-19/...
    Post by: MEMarge, Feb 11, 2021 in forum: Epidemics (including Covid-19, not Long Covid)
  6. MEMarge
    Post

    When is post viral illness PVFS and when is it ME/CFS? Discussion.

    I don't know much about polio. Are the problems following polio more systemic than problems with particular muscles? For example, walking with a...
    Post by: MEMarge, Feb 11, 2021 in forum: Diagnostic Criteria and Naming Discussions
  7. MEMarge
    Post

    UK: PIP appeals - advice, recommendations?

    This is very useful @Simbindi. My friend, with ME was given Zero points and assessed as being able to make complex budgeting decisions, based on...
    Post by: MEMarge, Feb 11, 2021 in forum: Work, Finances and Disability Insurance
  8. MEMarge
    Post

    Editorial: Concern for Covid-19 cough, fever and impact on mental health. What about risk of Somatic Symptom Disorder? 2021, Willis & Chalder

    Wasn't Wingassen involved with the dodgy CBT for IBS paper?
    Post by: MEMarge, Feb 9, 2021 in forum: Epidemics (including Covid-19, not Long Covid)
  9. MEMarge
    Post

    Gastro problems and Anxiety/Stress finger pointing

    Are you on a Facebook Group for Parents of children with ME? They may have suggestions of suitable doctors to see. Some adult docs will see...
    Post by: MEMarge, Feb 9, 2021 in forum: Gastrointestinal and Urinary
  10. MEMarge
    Post

    Migraine headaches in Chronic Fatigue Syndrome (CFS): Comparison of two prospective cross-sectional studies, Baraniuk et al, 2011

    Grandson of a friend had dreadful/longlasting headaches/migraines from about 11-18 and had been diagnosed with ME. (Bath) He then saw a...
    Post by: MEMarge, Feb 8, 2021 in forum: General and other signs and symptoms
  11. MEMarge
    Post

    Dialogues for a neglected illness - videos on experiences of people with ME (funded by Wellcome Foundation)

    @Gecko, Has MEAction linked to these?
    Post by: MEMarge, Feb 8, 2021 in forum: Advocacy Projects and Campaigns
  12. MEMarge
    Post

    Non-hospitalised Children & young people (CYP) with Long Covid (The CLoCk Study), 2021, Stephenson and Crawley

    Another grant, how does she get all this £ ? Esther Crawley: Sanofi: Exploring the prevalence of Pompe’s disease in patients diagnosed with...
    Post by: MEMarge, Feb 8, 2021 in forum: Long Covid research
  13. MEMarge
    Post

    Non-hospitalised Children & young people (CYP) with Long Covid (The CLoCk Study), 2021, Stephenson and Crawley

    There is a list of CFS research projects at Bath below: https://www.bristol.ac.uk/academic-child-health/research/research/cfsme/
    Post by: MEMarge, Feb 8, 2021 in forum: Long Covid research
  14. MEMarge
    Post

    Non-hospitalised Children & young people (CYP) with Long Covid (The CLoCk Study), 2021, Stephenson and Crawley

    September 2019 National Institute for Health Research (NIHR) Research for Patient Benefit (RfPB) Programme: £149,000. Measuring Health in...
    Post by: MEMarge, Feb 8, 2021 in forum: Long Covid research
  15. MEMarge
    Post

    Lightning Process study in Norway - Given Ethics Approval February 2022

    Esther Crawley's lot still keen on LP. From https://www.bristol.ac.uk/academic-child-health/grants/ September 2020 Anderson E. RCF - ReCLAME...
    Post by: MEMarge, Feb 8, 2021 in forum: Psychosomatic research - ME/CFS and Long Covid
  16. MEMarge
    Post

    Non-hospitalised Children & young people (CYP) with Long Covid (The CLoCk Study), 2021, Stephenson and Crawley

    Stevenson Terence PI. Crawley Esther Co-A. Non-hospitalised Children & young people (CYP) with Long Covid (The CLoCk Study). £1.35 million
    Post by: MEMarge, Feb 8, 2021 in forum: Long Covid research
  17. MEMarge
    Post

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Hmm.....
    Post by: MEMarge, Feb 8, 2021 in forum: Long Covid news
  18. MEMarge
    Post

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    I also believe that people with ME consistently downplay their level of disability. When I was helping a friend with her PIP application, I had...
    Post by: MEMarge, Feb 5, 2021 in forum: Long Covid news
  19. MEMarge
    Post

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    One of the first things I did when my daughter became ill was to find accounts of people who had recovered. There seemed to be a huge variety of...
    Post by: MEMarge, Feb 5, 2021 in forum: Long Covid news
  20. MEMarge
    Post

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    Only a couple of months to go for NICE now :)
    Post by: MEMarge, Feb 5, 2021 in forum: Long Covid news
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