Another great letter. For info, NICE finally added a warning to the current Guidelines around !0/11 Dec 2020, following much communication from...
It's all babble to me, but I am concerned that Trish G decided to endorse it with her "signature".
For people who have no idea what ME is like, (for example most doctors and healthcare workers) how would you express it briefly? You could use:...
Thanks again @Caroline Struthers
Do we know what group it would be in?
My notes on some of this: Clare Gerada got Covid in early March, her worst symptom was severe muscle pain. As she began to feel better she started...
My daughter developed ME after viral labyrinthitis. The initial infection was not too bad, she was nauseous and a bit unsteady walking, but was...
The authors seem to happily recommend low dose hydrocortisone or Ritalin "A double-blind, randomised, placebo-controlled crossover study of 60...
The consultation period has now ended (22 Dec) and the Committee are now finalising the Guideline, presumably in response to the comments. I...
Your trip 15 years ago sounds fascinating @Peter Trewhitt. Sorry your health has declined so much.
Wow, great that this doctor has written about this.
So, this PHQ basically asks "Are you bothered?" or rather "Over the last week have you been bothered by x" There are then 3 options: Not at all...
Great news and good timing. 9-11 April 2021. 10 days before the Final Version of the new NICE GDL are produced. Also a good lead in to ME...
Great article @Caroline Struthers
I guess it will be a chance for someone to record what she says!
In the video he talks about doing a larger trial to see if improvement in wellbeing is sustained for a longer period alongside reduced healthcare...
The DWP had not contacted my friend's GP prior to her assessment.
"Fatigue was assessed using the validated Chalder Fatigue Scale (CFQ-11) (35, 36). Participants are asked to answer these questions with reference...
Inflammation of the dorsal root ganglia have been found in autopsies of people with ME. "Fibromyalgia is clearly a stress-related disorder....
I think it could be months before wider Pfizer availability in UK and infection is spreading fast.
Separate names with a comma.
