So sorry for the way you are treated @Arnie Pye. I do think the fact that it is so visible has helped me. Even before it was so obvious from the...
My spinal abnormality is congenital rather than genetic, and the GP and pain consultant do take it seriously. After a significant worsening about...
Well, they don't seem to think that new NICE GDL will change their approach to people with ME. Though the above ad appears to be for a bank,...
The phrase "Life changing illness" can be useful. (It, or similar, such as life-altering injuries is used in the news.) Maybe alongside X can only...
I thought the webinar came across really well. Very positive about involvement with Solve.
Wonder if this is the Dr Jamie Leverett involved in the above: https://leveret-mindfulness.business.site/#posts
Panel list and declaration of interest from Long Covid Guideline: https://www.nice.org.uk/guidance/ng188/documents/register-of-interests
Can't see a list of guideline Committee, but the register of interests is available:...
A young clinical psychologist at UCL, which generally matches Bath for level of appalling tretment of youngsters with ME and their families. This...
Violins on the Titanic springs to mind.
Interesting to see low expression of interferon receptor. Prof Holgate's team in S'hampton had good results using inhaled interferon to reduce...
Hi @Medfeb any useful info/sections worth watching?
I think this is to the Dept of Health as NICE have continually ignored requests to add warnings "We call on the Department of Health to make a...
@Joan Crawford @PhysiosforME
Thanks Andy, I did have time as back too naff to concentrate much. It is based on views and comments of 3 people with ME who volunteer with...
Intereting about the Dubbo studies @Hutan. My daughter's viral labyrinthitis was quite mild compared with many I know. My sister was unable to...
Both paediatric and adult "CFS Clinics at Liverpool" are regularly reported to be dreadful. Both their lead clinicians Dr Theo Anbu and Dr Michael...
The psychs and their supporters will be fighting this, as hard as they can, to retain their careers and income streams. My thoughts at the moment...
Split from this thread: Exercise Intolerance in Cystic Fibrosis Importance of Skeletal Muscle, 2020, Harris et al Use of sildenafil (Viagra) to...
Thanks @Andy and @Hutan especially
Separate names with a comma.
