I wrote a little about "Cargo Cult Cures" once on my blog. It's really a post about how difficult it is to tease out what factor helped any...
Another one on PRS https://pdfs.semanticscholar.org/e237/b036a6a78ff573b9a0dcdc1870547d96ca44.pdf
And an abstract about a boy who developed PRS from CFS/ME http://journals.sagepub.com/doi/abs/10.1177/1359104511403680
I found this: Pervasive refusal syndrome as part of the refusal–withdrawal–regression spectrum: critical review of the literature illustrated by...
And the only real difference between ME and PRS seems to be the "unrefreshing sleep" descriptor. I don't like that one, as it's so hard to really...
So the question wasn't answered! Yes or No?? Doesn't even say plans will depend on out come of NICE review. Hmmmmm
This is interesting. Must see if I can find where to buy the test kit.
Who will be writing the new scope I wonder? And what do other scoping documents look like?
On page 5 this is interesting. It is as though GET and CBT are already written into the scope? Why? Also the getting back to school/work...
Oh wow... much shorter than I expected! Only 8 pages.
Thank you for finding this - I haven't read a scoping document before so wasn't sure what it would look like. Frustratingly I'm about to take a...
Regarding "lying down to fight", I love that idea.
As I understand it these were the "experts" consulted during the review processes. I think, and perhaps somebody else can clarify on this, that...
Perhaps - do we know if she has asked anything about ME before? Sometimes I suspect asking a question this way might be a better way to get a...
Perhaps she is putting them on the spot? They now should answer either YES or NO. To answer YES would show there is an agenda to increase PACE...
Scary stuff @ukxmrv None of it very professional sounding. :(
I assume you are talking about the BSP incoherence there, which is by it's very nature is a smoke and mirrors endeavour. LOL
Wow! So a trial - that is supposed to be scientific and about finding the truth - has "objectives" that are in line with a DWP programme to get...
How long has Holgate been chair? When is his 5 years up?
I agree. I think in the end you learn your own personal boundaries. I have always has a higher than average HR and lower than average blood...
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