I have now asked (yesterday). No reply yet.
I wonder how they will structure the meeting. Will I get a minute or two to say anything or is it a free for all?
Here's a thought. To acknowledge a problem of this magnitude will mean the repercussions are far far reaching. Some individuals, it seems, are...
Oh that's fortunate. They aren't looking at ME then, just chronic fatigue. Nothing to do with us then. :)
Thanks. That's the same as me so far.
Is it true that we will get sent some material to read first? If so when? I'd like to have reasonable time to digest the material. Anyone know?...
I was wondering if anyone knows how a NICE stakeholder meeting works? I am guessing that our “CFS/ME” one will be well attended, so I’m...
LOL That gave me a giggle. :) Add my name too. Sally Burch
Can I ask how the 1st and 3rd points differ here. I'm reading it again and again... but I must be missing something, because these two points...
Here's something I've started to wonder about. If psychiatric problems are excluded from income protection insurance, and other policy payouts...
She also wrote this article: Tuesday, 26 January 2016 "The Amazing Significo: why researchers need to understand poker"...
Ah... @Jonathan Edwards I stand corrected. The irony of the "weak" version of a homeopathic remedy in fact being able to contain a drug at any...
"Homeopathic DRUGS"????? Surely the products cannot be described as drugs if no molecule of the original substance exists? Homeopathic...
The little lights work almost anywhere on the body. I have worn mine inside a sock, or my bra. I just took the strap off. Sure I couldn't read...
@Clark Ellis Each day the Fitbit app tells me what my resting HR is... as the day progresses the number sometimes changes a little. I have...
A detailed and useful post @Clark Ellis ... Though I have to say I've no complaints about the Fitbit HR Charge2 (I think that is the name of the...
Excellent letter @Barry - but I would argue that it is "science based". Science is about getting to the truth of the matter. It should never be...
Today I think is the deadline for the submission of applications for the meeting. I suggest you ring them and ask for the email about the meeting...
Thanks @Barry I've now asked locally. The group is no longer active, but did some very good work before my time apparently. :)
@Jenny TipsforME Have MEAction had an invitation to the stakeholders meeting? That would surely give a clue as to whether you are properly on...
Separate names with a comma.
