All those words and so little actual information!
However at a certain critical point general attitudes can flip, and the old paradigm gets seen for what it was. I think we are close to reaching...
And perhaps they are not such skilled manipulators of ME attitudes as they first supposed??
Hear hear. CBT/GET didn’t show clinically meaningful outcomes for any cohort. And the diagnosis any given patient is given seems to depend on...
My own view is that CFS doesn’t exist in its own right. There is CF which is a symptom and ME the disabling disease (where the inability to...
It would perhaps be good if PACE authors looked at their data again, and noticed that ME patients were dropping out more frequently (or something...
I’m not yet blocked, and got an interesting reply this morning. Screen shots as I’m not sure how to link via my phone. (Edit, sorry images seem...
I just checked. Apparently not. I guess I should have properly tagged him in the Tweet.
:wtf: He he! I think it was good to post it quickly. I’ve used a screen shot to point out the ME/not ME inconsistentency over on Twitter. [MEDIA]
Very interesting. I haven’t had as many tests as you, but PEM is less horrid now (& with shorter duration consequences) and I get less out of...
I have found that I don’t do well with sugar in my diet. I have largely cut out sugar and recently also most carb foods from my diet (I still eat...
I haven’t managed to keep up with screenshots of Tweets and am now without my laptop til next week. I will try and do more then (just on phone...
That was SWessely this is MSharpe
Oh. So I thought he was claiming that PACE didn’t change anything much regarding guidelines.
Pity no mention of PACE flaws, but still I think enough to help those new to MEbe cautious about GET
Curiouser and curiouser!
I think these work if you have 2 or 3 people who know each other. But for a big group, with difficult issues to discuss, I think it would not be...
I would love to get involved. But I can’t really see how. I definitely can’t fly on the same day as do a meeting. But for the Jan meeting NICE...
I don’t understand why they use the venue they do. Surely a hotel beside an airport would be easier travelling for all. If I were to go I must...
This!
Separate names with a comma.
