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  1. Keela Too
    Post

    Donation to Tuller/research as respond to our critics

    #IsupportTULLER ?? (After asking David's okay of course)
    Post by: Keela Too, Apr 9, 2018 in forum: Advocacy Projects and Campaigns
  2. Keela Too
    Post

    Donation to Tuller/research as respond to our critics

    #TullerScience #ExploreMEscience #RealSCIENCEforME
    Post by: Keela Too, Apr 9, 2018 in forum: Advocacy Projects and Campaigns
  3. Keela Too
    Post

    Donation to Tuller/research as respond to our critics

    Just tested over on Twitter & doesn't work
    Post by: Keela Too, Apr 9, 2018 in forum: Advocacy Projects and Campaigns
  4. Keela Too
    Post

    Donation to Tuller/research as respond to our critics

    Yes - #Science4ME wasn't actually a suggestion, just an observation. I'm not sure if "&" works as a hashtag
    Post by: Keela Too, Apr 9, 2018 in forum: Advocacy Projects and Campaigns
  5. Keela Too
    Post

    Donation to Tuller/research as respond to our critics

    Sounds a good idea. However I think a shorter hashtag would be good. #pwme4science Actually best would be #Science4ME LOL
    Post by: Keela Too, Apr 9, 2018 in forum: Advocacy Projects and Campaigns
  6. Keela Too
    Post

    Action for ME's administration and how that affects its views about treatment

    Gregor Purdie and Julian Newton however don't seem of the BPS bent, so surely AfME must be getting better advice now?
    Post by: Keela Too, Apr 7, 2018 in forum: General ME/CFS news
  7. Keela Too
    Post

    PACE trial TSC and TMG minutes released

    Also isn't there something that says with ME our HR doesn't reach our max properly? So do they test lactic acid accumulation or something to...
    Post by: Keela Too, Apr 6, 2018 in forum: Psychosomatic news - ME/CFS and Long Covid
  8. Keela Too
    Post

    PACE trial TSC and TMG minutes released

    Interesting too that Resting HR affects the score. I notice that now I've got ME I have a higher resting HR than I used to have. Also if I go...
    Post by: Keela Too, Apr 6, 2018 in forum: Psychosomatic news - ME/CFS and Long Covid
  9. Keela Too
    Post

    What is Action for ME's current (March 2018) position on the PACE trial?

    I suspect that AfME hedge their bets because they can't or won't deviate from whatever current NICE guidelines say. The furthest they seem to...
    Post by: Keela Too, Apr 4, 2018 in forum: General ME/CFS news
  10. Keela Too
    Post

    Boom & Bust, where's the evidence?

    Right enough @unicorn7 - When training the horses for endurance we certainly didn't aim for the same amount every day. Used by the psychiatrists...
    Post by: Keela Too, Apr 4, 2018 in forum: Psychosomatic research - ME/CFS and Long Covid
  11. Keela Too
    Post

    Boom & Bust, where's the evidence?

    Agree @Woolie - they have turned what could be a useful concept for long-term management of a fluctuating condition into something totally...
    Post by: Keela Too, Apr 4, 2018 in forum: Psychosomatic research - ME/CFS and Long Covid
  12. Keela Too
    Post

    Boom & Bust, where's the evidence?

    Yet in a way they are right. Trying to spread activities out (at whatever level you operate) helps to avoid unhelpful bodily reactions (PEM or...
    Post by: Keela Too, Apr 4, 2018 in forum: Psychosomatic research - ME/CFS and Long Covid
  13. Keela Too
    Post

    Immunoadsorption to remove ß2 adrenergic receptor antibodies in Chronic Fatigue Syndrome CFS/ME (2018) Scheibenbogen et al

    I agree that we shouldn't expect every avenue explored to lead to a result. Certainly, I don't expect any psycho-social avenue to lead to...
    Post by: Keela Too, Apr 2, 2018 in forum: ME/CFS research
  14. Keela Too
    Post

    Immunoadsorption to remove ß2 adrenergic receptor antibodies in Chronic Fatigue Syndrome CFS/ME (2018) Scheibenbogen et al

    Well this rings true to the flu type feelings I get. A good line of research to follow up methinks. Now where’s the substantial funding required?
    Post by: Keela Too, Apr 2, 2018 in forum: ME/CFS research
  15. Keela Too
    Post

    Dr Myhill’s complaint to GMC about PACE authors.

    Probably something like those dated 25th but sent by snailmail were still counted?
    Post by: Keela Too, Mar 31, 2018 in forum: General ME/CFS news
  16. Keela Too
    Post

    Dr Myhill’s complaint to GMC about PACE authors.

    I have to admit that when the call went out, I imagined 60 letters or so would be a fantastic response. To have 210 different individuals...
    Post by: Keela Too, Mar 31, 2018 in forum: General ME/CFS news
  17. Keela Too
    Post

    PACE trial TSC and TMG minutes released

    I'd love to see some-one from @action4me pipe up and defend their charity on this matter. Were they colluding, being bowled over by force of the...
    Post by: Keela Too, Mar 29, 2018 in forum: Psychosomatic news - ME/CFS and Long Covid
  18. Keela Too
    Post

    UK House of Lords/ House of Commons Questions

    Yes @Sbag I was thinking since writing that post that we should take it beyond GET/CBT. Thanks.
    Post by: Keela Too, Mar 28, 2018 in forum: General ME/CFS news
  19. Keela Too
    Post

    UK House of Lords/ House of Commons Questions

    Reply in about the YELLOW CARD system. Hmmmmm.... okay so where next? It would seem to me that all interventions funded by NHS and approved by...
    Post by: Keela Too, Mar 28, 2018 in forum: General ME/CFS news
  20. Keela Too
    Post

    Rethinking the treatment of CFS — a reanalysis and evaluation of findings from a recent major trial of GET and CBT (2018) Wilshire et al.

    You might need to look at the other tab: "Tweets and Replies". It might be only 2 tweets are tweets not linked under another one as a reply. ;)
    Post by: Keela Too, Mar 27, 2018 in forum: Psychosomatic news - ME/CFS and Long Covid
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