I think Dr Nath's NIH study of people with ME/CFS might provide a template to try to understand the illness(s) people with the hEDS label actually...
I fully agree with your post, particularly that the criteria should be broad - ME/CFS is not like e.g. diabetes - diseases which have a biomarker...
Slightly tangenital (as always) but I wouldn't hold out much hope of UK Government research awards learning from the NICE guidelines. E.g. the...
You obviously know way more about this than I do. Yes if they'd even reported that participants hadn't been able to return to work, education +++...
Yip I think Brian Hughes +++ has been trying to change the norm --- but it seems to persist. Yip --- they shouldn't have been allowed to drop...
Posts moved from Paul Garner on Long Covid and ME/CFS - BMJ articles and other media. I think the statement that scientists are flawed humans is...
Yea it seems slightly weird. From memory the virus which caused "Spanish" flue has been characterised/sequenced - it was isolated from frozen...
For a professor of infectious diseases, that's a pretty basic mistake i.e. "Spanish" flue was a coronavirus!
A profound thank you for that intervention --- I needn't say it was coherent - you know that. The sooner we get away from defending crap science...
I wonder if it would be possible to report it to the professional body i.e. they are Doctors so BMA or whatever the regulatory body is.
True but the fact that the Government agencies, like NIHR, consistently fund low quality research - unblinded trials of psychological...
Haven't read the references/link PACE was by far the largest research grant £5million around 2011. Only the recently funded GWAS study (Chris...
Yea one of the suggested reasons, i.e. why ME/CFS is underfunded, is that it is poorly understood, so it looses out to better understood diseases....
He might also help to merge ME/CFS with Long covid i.e. currently the "big bucks" Government funding is ring fenced for long covid (ME/CFS is out)...
I'd be interested to know why B12 was prescribed. The reference test was Methyl Malonic Acid, which increases when you're deficient in B12, but...
The big metabolic studies would have picked up B12 deficiency so it seems that none of the participants had it. Also, B12 deficiency results in...
I agree and I'm not aware of any objective evidence that these interventions work - if fact the objective evidence indicates that they don't work...
Maybe it's the fact that I live a sad life --- but I laughed when I read this. Others, long familiar with psychological interventions, and having...
Only glanced at this but perhaps the the problem is that the Cochrane authors don't care enough to properly assess RoB - or maybe they have a...
I haven't kept up but Jonas Bergquest, Upsala University, Sweden, got an OMF grant to look at Kynurenine. I'm impressed by Jonas/the analytical...
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