Can anyone find the full study protocol - I'm interested in the outcome indicators; noticed a mention of the dreaded "SF-36-PFS questionnaire"...
Might need some help with this @Sly Saint ! E.g. was there a decision to provide additional funding and if so the was it after the draft NICE...
Hi guys now that the long awaited revision of the NICE guidance on ME/CFS is nearing completion (18th August) I thought I'd create a thread to...
Hi MSEsperanza I haven't looked at your query but if you don't get an answer via Science 4 ME then I/Michiel can post here - #MEAction European...
I agree and as you had identified I'm accusing the Government of gaming the system - they are providing treatments which are ineffective but...
Jaime Seltzer [ME Action], from memory, told me that she had some sympathy with critics who highlighted that activity levels might explain...
I think I recall that one of the Thought Cages programs on Radio 4 looked at ways to improve patients satisfaction. It identified some...
This gave me a laugh "Surgical scars and the expansion of narrative possibilities. By Camille Kroll." Reminds me of Zen and the Art of Motorcycle...
I recall that you highlighted that it was difficult to see a way into ME/CFS e.g. for a young Doctor willing to work in it. For the...
If you listen to the end of the video (it's rather painful and seems long --- 2 minutes or whatever) then the next screen which appears is a...
I've only glanced at this and I'm not confident that I understand it but basically they took some blood samples and poured them onto slices of...
I'm just wondering if this would be indicated/supported by the proposed GWAS study - OK that's now a standard reply from me! @Simon M I have a...
Thanks @Sly Saint, I assumed it wouldn't be published! I'd been regretting not including a comment based on insight from @Jonathan Edwards i.e....
thanks Caroline - Just skimmed the Times article and it reads fairly well --- nothing immediately jumped out at me.
I think they also used actimetry/actigraphy i.e. objective outcome indicators - "2. Physical activity (Sensewear armband) [ Time Frame: Analyzed...
I agree that the Phase iii rituximab study was blinded - I thought they also used actimetry (need to see if I can find the study protocol). EDIT...
Thanks @Trish @Caroline Struthers just submitted this* and got the auto-acknowledgement email. *"Dear Editor NICE published its draft updated...
How do you submit a rapid response - I'm thinking of replying. Thanks @Trish
"raise questions about how the evidence could have shifted so substantially" Well maybe a redraft "raises significant questions about the...
emailed* this long covid group re this article & thread: "You may already be aware of this:...
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