Noticed Alzheimer's gets a mention - it's woefully underfunded but if sleep/wake cycle [orexin] is relevant to Alzheimer's then it should get some...
Interesting, as well as Younger's research, I assume that the GWAS study should give clues i.e. if this is relevant to ME/CFS - correct? EDIT:...
Slight digress - discussion re AAPG's - including secretariat ship on the Paddy O Connell show - radio 4...
Just emailed a FOI request to Department of Work and Pensions [DWP] re Nick Ross: "Nick Ross, on his website [https://www.nickross.com/clients/]...
Wouldn't it be better to simply put an actimeter on the patient, check whether they've been able to return to work ---- something objective to...
That shows up what a scam it is - one Doctor can prescribe X and it works and another Doctor can prescribe Y [for the same disease] and it works -...
Got a response to my request to MPs, who participated in the debate on CFS in 2019, to challenge the Governments continued support for "low and...
Interesting, in the response to AQW UIN 33370 the Minister for DWP stated that: "The National Institute for Health Research (NIHR) and UK Research...
I'm guessing that someone could ask a freedom of information request e.g. asking DWP whether they paid Mr Ross and if so what was he contracted to...
Sounds like what the PACE etc. mob do in the UK - just get funded to do research which provides no useful data.
Was going to say cynic - but wise/observant would probably be more appropriate.
Decided to try emailing the members of the APPG for "Myalgic Encephalomyelitis (ME)" i.e. to see if they'd try to challenge the Ministers who fund...
Contacted UK ME Action [https://www.meaction.net/countries/uk/]. Hi, ---- I recently emailed MPs, who'd participated in the Parliamentary...
Interesting I had vaguely wondered if the APPG for ME had been resurrected - has it? The last APPG for ME seemed to have a pretty torrid time -...
This seems to make lobbying more difficult e.g. you'd need to have someone in these constituencies who is prepared to make a complaint to their MP...
Hi just had an email from Darren Jones [MP for Bristol North West] "Please can I ask you to supply your full address and postcode? There is strict...
I haven't read the study being discussed - here's my "usual" rant! There's a thread on a study which compared actimetry with self reported...
Yea recall a UK charity which used to run stories "Miss X [glamourous picture provide] completed her degree despite having having ME--" so, those...
Might explain why she didn't reply to my emails. I kind of had a feeling she mightn't wish to start challenging researchers [for doing low quality...
Moved post I emailed the LongCovidSOS group*, after noticing one of their members on the Independent Sage weekly YouTube video last week. Maybe...
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