Hi, I think we should try to build links to the Long covid community. Long covid may help to decontaminate poorly understood diseases like ME/CFS...
Good to hear it's working but you wouldn't believe it i.e. based on the media coverage here.
Decide to look at the number of cases in Australia, after all the media coverage - no disrespect, but they made me a laugh - 200 cases a day...
Yea because the diagnostic tests are crap* and people haven't picked up a point that @Jonathan Edwards made i.e. if the proposed causal...
Probably one way to "understand" post treatment Lyme disease is to look at the introduction to this paper: " Abstract Background: Neurologic Post...
“During this project, we will be developing a Core Outcome Set (COS) for long COVID. This is an important step in deciding best how to measure...
Very interesting insight i.e. "NIHR was specifically set up to lower the standards supposedly required by MRC- to let politically useful projects...
I decided to email* the MPs [who are still in Parliament] and who participated in the debate on CFS**. I may have overstepped the mark re...
There are probably folks here who were involved in the lobbying surrounding the UK (Westminster) Parliamentary debate on ME [Thursday 24 January...
I've noticed that these MPs recently asked Parliamentary Question on ME/CFS so I've emailed them to see if they'd ask a further question. [Claire...
Hi I've just emailed my MP* [Claire Hanna - Siobhán is her assistant]. If I can't get Claire to ask this question then can anyone else think of an...
Thanks @Trish Need to make the effort to look at this. EDIT - yes, page 317 has a neat summary of the problems: "The majority of the evidence...
@Trish you seem to keep up with the NICE Guidance review - do you have a source for the statement that NICE considered PACE etc. to be "low...
If the Indian variant has a reproductive rate of 6, in unvaccinated people, and the vaccine isn't 100% effective at preventing transmission, then...
Yea frankly cheeky to say "peer reviewed" - "low quality" is what NICE considered it to be So what they should be saying --- acknowledge NICE...
Merged thread Here's the question* my MP Claire Hanna asked and the response: *"To ask the Secretary of State for Health and Social Care, what...
Reminds me of Derya Unutmaz work on MAIT cells in the gut lining - not sure what became of that Also, James Baraniuk patented an idea that leaky...
There's an excellent post by @Jonathan Edwards here* I'm not optimistic about this holding up (although Jonathan's comments might be entertaining...
Yes, Australia and New Zealand certainly appear to be able to eliminate SARS-CoV-2 but I'm in the UK - I can't see it being eliminated here - so...
The NICE review, of it's guidance re ME/CFS, recently categorised the evidence from unblinded trials, with no objective outcome indicators*. as...
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