To me the politics of ME is quite complex. Invest in ME formed a group called EMEA [European ME Alliance] which is a group of European National...
Excuse me for not keeping up here but if there is a "review of Cochrane" and it's carried out by the faithful/buddies ---- then what is the risk?...
Re "Glasziou" I assume that this is: "Prof. Paul Glasziou Director Institute for Evidence-Based Healthcare Faculty of Health Sciences & Medicine"...
Hi I happened to be replying to a message from @Ron and thought I might post part of the reply here: "I certainly think the technology is...
Yes I had thought that by: commenting on the fact that Solve had policies in place re access to donated samples; and not commenting on the...
@Andy @Hutan I highlighted that Aaron Ring at Yale University is very interested in obtaining ME/CFS samples to assess them using the REAP...
The establishment being "iconoclastic" a concept that raises some questions!
Has anyone looked for these in ME/CFS? Also, would an association turn up via the GWAS study?
Is this not linked to Prusty's hypothesis that you have latent infection and this causes the downstream effect i.e. ME/CFS? I assume Prusty's...
As I noted above, if this technique had been tested against known autoimmune diseases and it identifies the known autoantibodies then we an have...
Is the idea that autoantibodies may be relevant in ME/CFS based on the idea that: rituximab only removes some antibody producing cells (i.e....
Came across this study i.e. via Health Rising: Frontier studies on fatigue, autonomic nerve dysfunction, and sleep-rhythm disorder...
Sure you're aware that @Simon M has pointed out that GWAS has suggested clues re Alzheimer's.
Not sure if I'm helping but check out @Caroline Struthers posts on the response she received from NICE. This is my memory and it's seems a little...
It seems like you gave evidence to an expert group who grilled you - reasonable; i.e. basis for the revised NICE guidelines. It also appears that...
Yes I think this is key i.e. the length of time actimetry is conducted before an intervention (baseline) and post intervention i.e. to test...
Yea well if you report s--t in technical terms then it looks impressive: "Methods Forty-seven IBS-D patients were classified as having low...
Let's say that a reasonable researcher was going to test whether CBT & GET had a positive effect for people with ME/CFS --- I assume that's what...
@Caroline Struthers On the face of it this should be reported - to the Committee which oversees NICE/Department of Health or whatever. You can't...
Separate names with a comma.
