Extensive discussion re using actimetry here*. Also, bear in mind Jonathan Edwards's comment "When I acted as MRC advisor this recent time around...
I have a friend who quickly abandoned the psychology degree they started out on --- he said that most of the class were obviously there to try to...
Haven't read the comments above but I'm wondering how they will evaluate the "intervention"; I'm pretty confident that there will not be objective...
Occurred to me that Jonathan pointed out that the term for rheumatoid arthritis could be include "D4"*. A GWAS study, into rheumatoid arthritis,...
To state the obvious, this is where GWAS is intended to help. E.g. there's some discussion here* re a candidate gene (TPPP1), identified through a...
Seems like Binita Kane is someone the ME/CFS charities should try to cooperate with --- seems to nail it!
What strikes me about this is a positive i.e. the availability of objective outcome criteria [EDIT - like data on school attendance] for unblinded...
I used to watch Independent Sage (YouTube) and I seem to recall the issue of politicians saying --- "we've broken the link between infection and...
Yes, the APPG, or at least some members, may be happy to raise the issue - can you link it to NICE linking up with Cochrane? Good old fashioned...
Some random thoughts re Peter White's article (or at least how I recall it). Brian Hughes has pointed out that unblinded studies require...
Wonder if she was "selected" in the knowledge that would promote the ME/CFS cause but that seems ridiculous based on how excluded ME/CFS is ----...
Yip ---- let it die --- do nothing ---- and to be fair, while irksome to us (which they'll enjoy), it's a strategy that works! I'd just contrast...
Nice one Caroline - I can feel the salt being rubbed when I read this: "As NICE have just published a new guideline for ME/CFS informed by a...
To be fair he/these statements get a fair bashing from patients - thanks. As for this statement*; I recall people on this forum stating that...
Yes it's a thing of beauty: "Quis custodiet ipsos custodes? (Who shall guard the guardians?) .. The current answer is ... no-one." Well I vaguely...
I recall Simon M, in a review of a previous metabolic study (by Hanson's group), writing something along the lines of --- we [this study] didn't...
Haven't read the study (or even the abstract) but my knee jerk reaction is that they could have selected using actimetry combined with a diagnosis...
Yea carnitine is interesting to me. My wife has a neurological condition and low carnitine turned up in one of her tests; so she supplements with...
Hi thought I'd flag this up here. In their response, to an EU Parliamentary Question [asked by Günther Sidls (MEP)], the EU Commission stated...
Just wondering how they are going to reword it -- Rosetta Stone-- some interesting translations/euphemisms --- for pain in the flesh substitute ----?
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