Yes and from my understanding Naviaux’s hypothesis includes the suggestion that any initiating trigger likely needs resolving for CD-R problem to end
But isn’t the point of this article hypothesising that the causal agent becomes the stuck on CD-R which is then activated by any stressor ( so...
Whatever the mechanism I guess its likely that clonazapem is working in the same way. If these drugs are down regulating the clonally expanded T...
Thanks everyone for your replies. Like many things in this illness it seems there are many possibilities to what could potentially contribute to...
I think it definately must be the gaba effects @James Morris-Lent I just wonder how it is resulting in increased strength. I guess it is plausible...
I read where for Whitney Dafoe ativan increases his strength for a short period. I am also interested in this as clonazapem does the same for me....
My muscle biopsy revealed: Selective type II atrophy- this finding is consistent with inflammatory and malnutrition disorders, both of which seem...
I was just about to start taking clonazapem again because it is the only drug I have found helpful throughout my time with illness. In searching...
@mariovitali I have low levels of albumin, transferrin, and ceruloplasmin. I note that these are all synthesised in the liver. Do you think these...
I had ‘moderately reduced glycogen levels’ on my muscle biopsy even though I eat quite a bit of carbs. I am wondering whether this might be a...
Hi @JaimeS . Thank you for your attendance of this conference... I am wondering if muscle weakness/atrophy is ever mentioned as part of dysautonomia?
Has anyone had muscle biopsy for muscle symptoms? If so what were findings...
Does anyone who gets the internal vibration or external shaking also have muscle weakness as major symptom?
@LightHurtsME I am the same regarding the external shaking... They can contribute to severe crashes for me I assume because body doesn’t have...
Yes mine range from internal tremor where I can feel on inside but can’t see to severe external shaking episodes. I only get these in upper legs...
Thank you @Mij I assume then that Ron Davis did these tests as part of severely ill study...Do you know if he has talked about results of this...
Does anybody know if researchers have done any respiratory chain enzyme function analysis studies using muscle tissue in ME? The mitochondrial...
Hi @Gingergrrl Sorry for my slow response I haven't been on for a while...My doctor had health issues so its taken a while to get things moving...
I think also all the severe patients in Stanford study had gene testing and none had known mito disease causing mutations. I think its also quite...
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