Hi Rossy, we are so similar (when we've compared notes on the other board) re: dysautonomia and muscle weakness except that I never had muscle...
Hi @Dechi I am similar in many ways...severe muscle weakness along with dysautonomia are my worst symptoms. My worst was upper leg weakness...
@ladycatlover i had a biopsy last year and it is not something I would agree to again given my current state. My finding was severe Type II...
@chrisb and although biopsy carries the risk of sampling error finding 39 of 50 with type II atrophy (and very few with Type I atrophy) and now...
@chrisb if he came to those conclusions it makes me think he wasn’t actually studying ME patients and the muscle abnormality consistencies that he...
Thankyou for those comments re Behan research and biopsy usage @Jonathan Edwards
@Jonathon Edwards Behan found mild to severe type II muscle fiber atrophy in 39 of 50 cases - abstract attached. Weird that no more research...
What amazes me is that in the early 90’s Behan did a muscle biopsy study that found that 39 of 50 patients had Type II muscle atrophy. Reasonably...
Apparently the version of the gene testing doesn't include a lot of the G protein snps they found to be mutated so the research has hit a roadblock
I think on the other forum out of over 100 respondents about 60% said muscle weakness was a regular symptom
Hi Albgirl... yes I am bedbound and have severe muscle weakness including legs. My neurological tests were normal but muscle biopsy showed severe...
I think the basic hypothesis is that when one overdoes limited energy supply the CD-R is triggered further to shut body down more to conserve more...
I know we all know that the deconditioning theory is ridiculous. But maybe I should have viewed this a different way. The type II muscle atrophy...
Note from the moderators: We've copied some posts from a thread where the discussion focussed on the BPS theory of deconditioning to this new...
Note from the moderators: The discussion in this thread is focussed on the BPS theory of deconditioning. There is another thread for discussing...
http://www.digestivedistress.com/sites/default/files/pdf/ibs.pdf I just had terrible trouble a couple of days ago and found this article which...
Still this seems like it could be a helpful study as my understanding was that previous studies had not found the differences on the 2nd day but...
I asked this question a week or so ago: do people with genetic mitochondrial disease experience pem thinking they didn't since exercise seems to...
Thank you I will go through it for sure...
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