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  1. Cheesus
    Post

    Carol Monaghan granted a Backbench debate (UK Parliament) Thursday 24th January 2019

    Some Google-fu has led me to conclude that it will be 3 hours. Now that I am looking at the parliament website correctly (thanks @Esther12), I...
    Post by: Cheesus, Jan 21, 2019 in forum: General ME/CFS news
  2. Cheesus
    Post

    Carol Monaghan granted a Backbench debate (UK Parliament) Thursday 24th January 2019

    MEA says it is a 2pm. https://www.meassociation.org.uk/2019/01/invite-your-mp-parliamentary-debate/ Edit: Though that is not reflected in the...
    Post by: Cheesus, Jan 21, 2019 in forum: General ME/CFS news
  3. Cheesus
    Post

    UK Dec 2018 - £40 million personalised support package for long-term unemployed disabled people launched

    400 quid per person for 21 months of support? Doesn't sound particularly realistic. Edit: Actually 4000. My brain skipped a 0.
    Post by: Cheesus, Jan 9, 2019 in forum: Work, Finances and Disability Insurance
  4. Cheesus
    Post

    Pulsatile Tinnitus

    I have had this for years. I told my GP and also a neurologist about it, but they wouldn't even believe that I have it. I don't know why i even...
    Post by: Cheesus, Jan 6, 2019 in forum: General and other signs and symptoms
  5. Cheesus
    Post

    Ketogenic diet

    Really sorry, Keela. Someone on Phoenix Rising beat you to the punch :( I didn't think it would go that quickly.
    Post by: Cheesus, Dec 19, 2018 in forum: Other treatments
  6. Cheesus
    Post

    Ketogenic diet

    If anyone in the UK wants a free blood keto testing kit please let me know.
    Post by: Cheesus, Dec 19, 2018 in forum: Other treatments
  7. Cheesus
    Post

    Persistent fatigue induced by interferon-alpha: A novel, inflammation-based, proxy model of Chronic Fatigue Syndrome, 2018, Pariante et al

    As others have expressed, I do not understand the hype here. However, my eye was drawn to this, which is probably the most interesting thing and...
    Post by: Cheesus, Dec 17, 2018 in forum: ME/CFS research
  8. Cheesus
    Post

    A Life Hidden - Blog posts by Naomi Whittingham

    Thank you for this inspiring piece, @Naomi10.
    Post by: Cheesus, Dec 12, 2018 in forum: General ME/CFS news
  9. Cheesus
    Post

    Chronically-ill 37-year-old lands first ever job, thanks to ground-breaking UK charity

    I am a javascript dev. I am happy to help you find resources or whatever. Just send me a DM if you're interested.
    Post by: Cheesus, Dec 8, 2018 in forum: Work, Finances and Disability Insurance
  10. Cheesus
    Post

    Why is it so often said that almost nothing is known about ME/CFS?

    Uh huh... sure it is.
    Post by: Cheesus, Nov 30, 2018 in forum: ME/CFS research
  11. Cheesus
    Post

    Ketogenic diet

    @Kafka great! That is awesome to hear. I calibrated my device and tested again. I got more or less the same results as the first time, indicating...
    Post by: Cheesus, Nov 8, 2018 in forum: Other treatments
  12. Cheesus
    Post

    Ketogenic diet

    Haha okay. I was seriously baffled for a moment there. Anyway, i have since calibrated the monitoring device i bought, which i didn't do prior to...
    Post by: Cheesus, Nov 8, 2018 in forum: Other treatments
  13. Cheesus
    Post

    Ketogenic diet

    Thanks Kafka. That is a little confusing. When you say my keto readings, do you mean my GKI? The GKI scale mentioned at the beginning of this...
    Post by: Cheesus, Nov 8, 2018 in forum: Other treatments
  14. Cheesus
    Post

    Ketogenic diet

    I started a keto diet two days ago. I have just received my keto blood testing kit. My blood glucose measurement is 4.7 mmol and my ketones...
    Post by: Cheesus, Nov 8, 2018 in forum: Other treatments
  15. Cheesus
    Post

    Stanford Community Symposium 2018: Phair, Metabolic traps, Tryptophan trap

    I've had that experience with melatonin. Tryptophan is the precursor to melatonin.
    Post by: Cheesus, Oct 1, 2018 in forum: ME/CFS research news
  16. Cheesus
    Post

    Follow-up actions from 21 June Westminster debate - thank the MPs, donate to UK #MEAction

    I emailed my MP asking her to attend, however it was only the day before so I acknowledged that she would be unlikely due to her busy schedule....
    Post by: Cheesus, Jun 22, 2018 in forum: Advocacy Action Alerts
  17. Cheesus
    Post

    Fatigue is associated with altered monitoring and preparation of physical effort in patients with chronic fatigue syndrome (2018) van der Meer et al

    @Barry Not to my knowledge.
    Post by: Cheesus, Mar 8, 2018 in forum: Psychosomatic research - ME/CFS and Long Covid
  18. Cheesus
    Post

    Fatigue is associated with altered monitoring and preparation of physical effort in patients with chronic fatigue syndrome (2018) van der Meer et al

    Julia Newton at Newcastle University has done that. She took muscle cultures from patients and controls then subjected them to continued...
    Post by: Cheesus, Mar 8, 2018 in forum: Psychosomatic research - ME/CFS and Long Covid
  19. Cheesus
    Thread

    Pineapple Fund donates $50k to ME Action

    See the bottom of the page. https://pineapplefund.org/ We have been seriously fortunate :)
    Thread by: Cheesus, Feb 20, 2018, 5 replies, in forum: General ME/CFS news
  20. Cheesus
    Post

    Proposed 2019 presidential budget for CDC involves zeroing of CFS program

    I was referring to the existing $5m that the CDC will no longer be awarded, which was answered by @Dolphin.
    Post by: Cheesus, Feb 19, 2018 in forum: General ME/CFS news
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