From time to time people show up in my group asking if they sound like someone with ME/CFS based on their symptoms. And there are a few people who...
I talked about a potentially sympathetic neurologist in this earlier, longer post: I messaged her a couple of days ago and asked if she might...
An Adrienne Dellwo article again. She keeps writing these as if they were fact.
If the first author's, Jan Choutka's name sounds unfamiliar: He is (I think) the chairman of the Czech ME/CFS Association. Recently I shared his...
This was originally posted by a member of the Austrian Green party and reposted by the Austrian ME/CFS organization CFS Hilfe. Those in the...
I like how they don't even use the initials anymore for those acronyms and just pick any letter that comes next from the middle of the words. Now...
Thanks. (I wonder why I haven't seen this. This was published by the Hungarian Academy of Sciences and I follow two (!) of their repositories....
Every once in a while peptic ulcers are mentioned here as a parallel to ME/CFS. Peptic ulcers were seen as something caused by stress and/or bad...
Article from Serbia. Politika seems to be one of the major news sites in the country. Chronic fatigue as a consequence of corona Not everything...
I just thought I would share my own n=1 story, which shows that you can have some really bad hypermobility problems without actually having hEDS...
Discussion moved from ME Epidemiology - prevalence, peak ages of onset and gender ratio Question: what do you think is a reasonable time that...
I think is is great what's happening in the UK, but it looks like these things still also need some luck to happen, someone in a key position...
Yes, I actually mentioned that at the end of the original post, but I think I should have added it somewhere where it is easier to notice. :)...
One of the long covid studies the Hungarian Academy of Sciences is funding is this, as mentioned previously: - Training-induced compensation of...
Here is the full programme of the upcoming webinar "ME/CFS and post Covid in the Balkans" organized by EMEA:
I saw this today on the Slovenian ME/CFS, fibro etc Facebook page. They will talk about the diseases on a regional radio station for ME/CFS...
A few days ago a Hungarian network of private clinics organized a series of short lectures on long covid and I watched the two videos about the...
So now that everyone is checking their platelet count :) : Mine is very consistently right in the middle of perfect. I do have severe fatigue as...
This is from the Czech Republic. I started following the Facebook page of their ME/CFS patient organization and these are some recent posts from...
I understand. To be honest, when I feel better then I am very concise and to the point. Then when I'm getting worse I start to find it difficult...
Separate names with a comma.
