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  1. Helene
    Post

    Placebo effect: a psychosomatic component, or only an aggregate of other biases?

    I wonder how adrenaline fits in. Or is this encompassed in mood? I find adrenaline can completely change my perception of how ill I am. Earlier...
    Post by: Helene, Oct 4, 2021 in forum: Other health news and research
  2. Helene
    Post

    Investigating Fatigue and Exercise Intolerance in a University Immunology Clinic, 2020, Ambrus et al

    Oh good! I searched a few days ago to see if this report had been discussed on S4ME. Thinking there are going to be some questions on what they...
    Post by: Helene, Oct 2, 2021 in forum: Other health news and research
  3. Helene
    Post

    Beyond the Symptom: The Biology of Fatigue - Virtual workshop, 2021 - Report published 2023

    Just an FYI - the presentations are being recorded and will be available later.
    Post by: Helene, Sep 27, 2021 in forum: ME/CFS research news
  4. Helene
    Post

    Beyond the Symptom: The Biology of Fatigue - Virtual workshop, 2021 - Report published 2023

    Registered & will take in some of the ME related sessions. No registration fee or issue registering as a patient.
    Post by: Helene, Sep 26, 2021 in forum: ME/CFS research news
  5. Helene
    Post

    Closed An international survey of experiences and attitudes towards Pacing using a heart rate monitor for people with ME/CFS

    Done.
    Post by: Helene, Sep 26, 2021 in forum: Recruitment into current ME/CFS research studies
  6. Helene
    Thread

    Why Doctors Like Me Need To Read Chronic Illness Memoirs - An essay

    This brilliant essay from Electric Lit is a gem. It's affirming, easy to read, longish and mentions ME & Jen Brea. WARNING - I fell in love with...
    Thread by: Helene, Sep 23, 2021, 3 replies, in forum: General disability topics and advocacy
  7. Helene
    Post

    Current forms and checklists for disability

    Hi @rvallee Don't know if you've already checked the ME & CFS Canada FB group? There are a number of docs on disability applications in the...
    Post by: Helene, Sep 21, 2021 in forum: Work, Finances and Disability Insurance
  8. Helene
    Post

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    A concerning article as it casts doubt on the existence and seriousness of long COVID. If you can get by the bad taste the cynicism leaves, what...
    Post by: Helene, Sep 21, 2021 in forum: Long Covid news
  9. Helene
    Post

    Aripiprazole - Abilify

    This looks like good news @leokitten Please keep us updated!
    Post by: Helene, Sep 7, 2021 in forum: Drug and supplement treatments
  10. Helene
    Post

    Aripiprazole - Abilify

    @leokitten Just wanted to say I'm so sorry that the sleep improvements haven't lasted for you and very much hope you maintain the other...
    Post by: Helene, Aug 31, 2021 in forum: Drug and supplement treatments
  11. Helene
    Post

    I’ll tell you the secret of cancer, Atlantic Article

    This is a brilliant piece. Read to the end, the final paragraph is sublime! Her experience with a plethora of well meaning advice is so familiar....
    Post by: Helene, Aug 27, 2021 in forum: Other psychosomatic news and research
  12. Helene
    Post

    News from Canada

    Just watched. Kelli, is a previously healthy & active physiotherapist with long covid. She was dismissed from a long covid clinic with little help...
    Post by: Helene, Aug 23, 2021 in forum: Regional news
  13. Helene
    Post

    The Washington Post: My hope vs. myalgic encephalomyelitis, a chronic neuroimmuno illness

    This article speaks the writer's truth. It is thought provoking, beautifully written and has a powerful effect on readers. What more could we ask...
    Post by: Helene, Aug 8, 2021 in forum: General ME/CFS news
  14. Helene
    Post

    CoQ10 - Coenzyme Q10

    CoQ10 was the very first cure suggested to me by friends when my ME started in 1988.
    Post by: Helene, Aug 1, 2021 in forum: Drug and supplement treatments
  15. Helene
    Post

    Nickel allergy?

    I too had this problem for about a decade and gave up trying. Then I got a Polar 370 watch for heart rate monitoring a couple of years ago and...
    Post by: Helene, Jul 25, 2021 in forum: Hypersensitivity and Intolerance Reactions
  16. Helene
    Post

    George Monbiot on ME/CFS, PACE, BPS and Long Covid

    Thanks @JemPD Changed to eminent :) If any-one wants to use this let me know and I can do a full transcript easily. It's at least twice as long...
    Post by: Helene, Jul 23, 2021 in forum: General ME/CFS news
  17. Helene
    Post

    George Monbiot on ME/CFS, PACE, BPS and Long Covid

    Monbiot's birds eye overview of ME is one of the passionate presentations I've seen! His own 14-week bout of long covid and having two friends...
    Post by: Helene, Jul 22, 2021 in forum: General ME/CFS news
  18. Helene
    Post

    Bridget Mildon - patient advocate for Functional Neurological Disorders

    Aha! - that makes sense, or doesn't make sense - but it's now clear :) Thank you @Mithriel
    Post by: Helene, Jul 20, 2021 in forum: Psychosomatic theories and treatments discussions
  19. Helene
    Post

    Bridget Mildon - patient advocate for Functional Neurological Disorders

    I'm confused on the meaning of the "functional" label in medicine and having been wanting to bring this up for a while. It seems that FND is...
    Post by: Helene, Jul 19, 2021 in forum: Psychosomatic theories and treatments discussions
  20. Helene
    Post

    New Documentary "Living with Chronic Fatigue Syndrome"

    Just watched on YouTube and thought it was well done. The people with ME in the film gave a realistic impression of living with ME and the...
    Post by: Helene, Jul 11, 2021 in forum: General ME/CFS news
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