Thank you for sharing. A very useful clarification.
Pre ME I did not startle easily, but do now. However, given I live a very different lifestyle, much much quieter, only going out every few weeks...
It must be over three years since I have been able to get a visit from my GP. Before lockdown I was working up to a visit to the surgery as the...
Unfortunately these ideas can impact on the treatment given to people with ME, on Facebook and in patient forums I have read accounts by a number...
It would seem to me that this ‘phenomenon’, though it is not quite clear what the authors have observed, could in itself represent a cognitive...
Though this is likely to be the case for some people with ME, it does sound like an enormous vague generalisation that lacks a clear evidence...
Am I missing something or did they fail to include an objective biological measure of the underlying pAPS? So though this study was based on the...
@Michiel Tack, thank you for putting in the extensive work to achieve these important comments.
Yes @Invisible Woman we do not know near enough to make any statement about cause and effect in relation to sleep issues and have no idea whether...
Rhinitis is intermittent with me, but does often occur without any obvious infection or environmental trigger and is a feature of PEM for me....
Thank you @Joan Crawford for sharing. Below is the main text of the letter reformatted for those who like me might struggle to read it: Graded...
Oh that every group of medical and medically related professions had a group as on the ball and as relevant as Physios for ME.
@Marky, this is perhaps less of an ethical no no than with the UK paediatric study, but still telling people with health issues to ignore medical...
@PhysiosforME, where have you been all my illness. Very interesting proposals.
There was a whole field of psychology about why people are bad at making decisions in tasks where the outcome of that decision was delayed, for...
So we are both reluctant to use the medical system whilst simultaneously desperately seeking expensive medical assessments to prove we have a...
As a Speech & Language Therapist I am fairly confident that I do not have any specific voice or laryngeal issues that could not be explained by...
It is possible to argue this point, but in doing so it makes potential bias explicit, something that needs to be addressed in the experimental...
I second @Kalliope [added - and @Andy ] and also would argue that no research should be undertaken where the active treatment remains subject to...
The Sheffield events usually are, I watched David Tuller’s recent (or a life time ago) MUS talk after the event. [Added - Note - though I could...
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