Would ‘harmonisation of guidelines’ across Europe be a good thing when we mainly have bad and potentially harmful guidelines? Does any country in...
Not at all relevant here, but I have someone sifting for me some fifteen plus years of unsorted filing, papers, some junk mail and even unopened...
Reading through the report for the first time, it struck me what an indictment it is of current UK specialist provision and of the current NICE...
I have the ‘concrete’ symptoms (pain, headache, tiredness, sore throat, poor balance, etc), but I also have a subjective sensation of emptiness...
Their home page, see https://www.omf.ngo/, says
If like me you struggle with abbreviations and acronyms OMF is Open Medicine Foundation (see https://www.omf.ngo/omf-europe/ )
Forgive me if I have failed to miss in the context of the application of this model to ME/CFS.
Obviously because they are looking at just chronic fatigue we have no idea of how if at all this might be relevant to people with ME. Like...
My first thought is how on earth did this poor child cope with the intervention imposed on him. He was incredibly lucky to experience some...
I wonder if @strategist ’s suggestion early on in this thread of a poll is worth following up? Not thinking logically at present so not sure what...
I too have bad night sweats during PEM that also smells unpleasant. This seems to have similarity to unpleasant smelling sweat associated with...
For me more frequent urination is a symptom of crashes and it seems to smell more at these times. I first noted it around the time frequency...
I think it was that he retired from answering freedom of information requests. (My recollection is that at the time FOI requests re PACE were...
In terms of ethical approval there is generally in the UK a mechanism to get joint health and academic ethical approval in one go, but by...
If the scans and any surgery have to be done in another country wouldn’t it make sense to select subjects in that country too?
I have not looked at the comments thread but Disqus can do strange things; when the Virology Blog used Disqus it would sometimes swallow longer...
Have not yet read the article but it is such an important issue. Definitions of a number of illnesses/conditions are based on the male...
Is this the original reference number to the letter relating to anonymous service evaluation of existing adult service provision that Crawley...
Point taken, I was not intending to say that this research has demonstrated that seated yoga is not harmful for people with ME, rather wanting to...
Is this research of value in that it has found something that did not seem to make the participants worse on objective measures? Could such help...
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