A clearer understanding of severe ME is so important. Most people if they know anything of ME at all think only of ‘mild’ forms or of people who...
If ‘the patient is to be the agent of change’, the patient has to be empowered to act. A medical model of psychological intervention where the...
A negative coeliac test (as long as you had gluten in your diet at the time of testing) means you do not have the specific gluten allergy involved...
When I was tested for coeliac, I was already on a gluten free diet, so unbeknown to me at the time my negative test results were completely...
My feeling from the abstract is that they had not got a handle on the cognitive impairments in ME or how they might vary within and between...
@borko2100 is this improvement after a bad night’s sleep and deterioration after a good night’s sleep for the whole day or just at first in the...
They did before wait till the last day of a deadline they gave for an update. I have forgotten which this was, the Exercise Review rewrite or the...
Do they hope people will forget and go away, or is it just that they don't care about scientific integrity?
I don't know if relevant, brain fog at present so not really understood the above posts, but I find when I am in a period of improving,...
There would have been a fair number of people in the China of the Cultural Revolution, perhaps even the China of today, in Soviet Russia, and many...
Prof Hawkin may have had a very atypical form of MND (ALS); indeed in MND life expectancy on average from first symptom is arround four years,...
I am probably being foolish, but is CCI diagnosed by scans, etc or by observing symptoms? Is there then a variation in the neuroanatomical...
There is also the issue that we are currently unable to distinguish between remission and recovery. The abstract seems to use the two words...
Hopefully this will encourage the MUS empire builders to think again about trying to hijack ME, given we are a patient group where their preferred...
That was my experience of pacing as presented by an OT at a specialist ME/CFS service. She presented ME as a management strategy, but also...
My personal prejudice would be to react strongly against sleep standardisation, however in discussion forums a, for me surprising, number of...
From my personal experience when I was bedbound, before any issues of managing my ME, practical support for getting food, personal hygiene,...
I suppose it depends whether they have a mental health issue, though I remain sceptical that such as Munchausens exists, or if they are rather...
Is it worrying, that after incredulity that anyone would want to fake ill health, my first thought was 'Wouldn't it be wonderful to have the time...
I am sure this must be interesting, but my brain is not capable of processing such dense information tonight. I will try again in the morning,...
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