There are a lot of concerns about this. Portraying it as a treatment before it has gone through a trial should have been picked up well before...
Whoop whoop that is what we need. Now just have to sort out the courts, my letter is now on the way :thumbsup:.
Do you think they listened ??? I made that point and also advised that those that could not explain Me and PEM should be excluded including those...
Do we know if anyone has put themselves forward and were rejected? I did write in with my concerns about this and am now writing to the Family...
For me with the mum's I speak to and the children who are put through so much gaslighting, it is the recognition of PEM that we need to address....
GOSH closed their CFS clinic who were trained by Porf Crawley. They moved with all the same Dr/consultants I believe to UCLH They seem to follow...
Many members of Fiightback have had reports of over ups and false accusations in ME EDS and Mast cell. With children needing tube feeding the...
There is a program going out this morning on radio 5 live here is the link https://www.bbc.co.uk/programmes/m00050jw Sorry on the short notice...
Good for those with allergies
You are welcome :)
Been tracking my sons for years and you can tell the deepness of the PEM. I even made some videos on the circle of Post Activity Increase in New...
It was a good suggestion and I can imagine how busy you must be with all the stuff and nonsense going on and would not expect you to do more. I...
You need to add Functional Neurological Disorder (FND) to the long list of what to look out for. A lot of patients are being re-diagnosed with it....
I think this is a good idea. I also think it should be done by both. If S4ME on the professional side and then a group on the more person impact...
I just had a looked at the slides and well Fluff a Duck is all I can say :banghead::banghead::banghead::banghead: Slides...
Not if they suspect FII, that refusal is used against the mother as unwilling to let the child engage in education or socialising. So we find...
You are right and this is the difficulty we are finding. Because of the now Health wellbeing and social care are all one, we as mothers get hit...
Yes it was DR Glaser who was talking at that seminar. She sat on the NICE Safeguarding guidelines. I believe that Action for ME also sat on them...
I do not know of any that work in the NHS ME/CFS centres that know and understand ME and PEM.
I agree with you and take your point on board 100% The problem is that when you have engaged with them over several years and in some cases...
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