When I have worked out how to do this I will. It is exhausting. Like tracking a needle in a moving haystack. If you have ever tried to look...
I think it takes a lot of working out. The problem is I have to not only understand how the system works, talk their language do all that is...
Thank you so much and it is much appreciated as feeling as though you are dealing with this on your own as a family it is hard. As Suffolkers has...
Thank you Thank you that is great advice. I haven't been down the rout of alternative practitioners, as it took so long to get a diagnosis of...
I agree with most of this, it is a pity we know so little when POTS has been around for so long. However it is another can of worms that as a...
I did and have been posting. Professor Rowe came last year to point out the mistakes of not looking at POTS as he has for the last 20 years at...
Bless Ya will keep you informed, if I am not gagged and bound by the FII they use as a weapon.
Thank you Skycloud I had as he has grown at a thunderous pace which they comment on. The POTS dr thinks this is because he is naturally...
Yep When he was first ill they wanted to take him into hospital for a 4-6 week stay with rehabilitation methods of a tutor, lights and action...
In my experience any Doctor in any field that does not go along with the Biosocial model puts a mother under threat , so is a mother having...
Fluff I had incorrectly given Melvin Ramsay hero status. Thank you for the history of the name now that makes sense why so many get hung up with...
So we have cause and effect, but that is normal and although you get bursts of abnormal tenderness with a virus say (mine always flairs up when I...
My son was 8 when he first became ill and was resigned to the fact that no one would believe he was ill and has often says in his now sarcastic...
I guess you have to start somewhere with unpicking the whole mess. I have to say ME people are the most abnormal, normal people. I do wonder how...
I wonder why those points are tender in everyone? There has to be a reason - a cause and affect. Desperate is probably an understatement and can...
Yes and they have been brilliant, but you cannot convince a Dr/Gp that something is wrong unless you have a biomarker. You can give the research...
Moderator note This post has been copied across and several subsequent posts moved or copied from this thread: Myalgic Encephalomyelitis (ME) or...
Just asking because I have been wondering for a while and being just a mum with a child with ME is the most... Well you know I have no where else...
Why are they only reviewing 13 pieces of evidence? and how do we know which ones they are reviewing? Fluff a Duck how come they announce it this...
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