Just looked at the voting and I would like to see - Just veto CBT or any form of cognitive therapy in ME/cfs due to the behaviour of the research...
It is how MAGENTA and FITNET were used to coerce children to participate. At the time it took many of us to gently handle the situation to enable...
I think we need to keep bring up the MAGENTA trial and those quotes along with the FITNET/NHS trial, they need to be seen for what they were. If...
[ATTACH] Just so I can get my head around this and I'm clear in what you are implying that "Maybe the surgeon washed his hands with purified...
I understand but you must never dismiss the reality of most that live with the condition. Their truth is there it just needs to be seen. Family...
FOI is a good idea just to kick them into action but like you say it is the outcome that is important. What gives me hope and something to work...
My first draft of the letter to all Excuse the round robin approach but as you can appreciate time is short and my caring responsibilities...
The commissioning group in Suffolk, the MPs CEO's of all three hospitals and anyone else I can think of. I was asked at a presentation I gave at...
I think the biggest thing is the "further evidence of having ME at the bottom". I am now compiling a letter around that and in the New Year will...
I would if I knew how, will look into it but what would be better? I often put too much on. Now looking at the released the cross-government plan...
There is enough evidence all logged, the recording of Sophia Merza in the film https://voicesfromtheshadowsfilm.co.uk/welcome/reflections/ to...
Spot on, it is all in the words they use and how they then use the meaning. I think @Jonathan Edwards is right "Multi disciplinary" and "complex...
The other people to talk to are legal firms. It is never used in data collection and perhaps we should start looking because having a good...
I think there is more work underway, which is good to see. Sadly not many answer the questions posed to them but a good start? It has taken such a...
I haven't looked recently but they are well known to be wolfs in sheep's clothing. You have to look deeply into how they use their words/phrases...
But ECT has been used for a long long time so there is no excuse to not understand the impacts good and bad and why! We know the bias by mental...
Sadly my experience with a family member was not so good. To give a treatment without tracking all outcomes and collecting the data is wrong. To...
There is most defiantly a Pem state and we need everyone to understand this. The lived experience should be at the forefront of our...
It seems to me that PEM (or what ever you want to call it) is not understood, looked for, tracked or individualised so that understanding of the...
I can't read the paper, but how can this happen is the question. If it failed before and the person was in the elderly bracket why would they try...
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