It is how they look at symptoms such as the Functional dizzyiness pain fatigue and movement you pick out how they can use this to explain classic...
I have been stating how children and young people are abused in this way for over 10 years now and it should come as no surprise they are going...
If you look at the NHS FND list you will find it on there. Each hospital now has FND clinic. So even though you have other conditions they can...
The visible app might give some good data on pacing and perhaps this can be adapted to factor in "not trying too hard" Pacing is complex and...
I need to work on getting a message across to Patient Participation Group at my local GP for young people with ME and PEM and CEOs to start to get...
Well I am rounding up the wagons so to speak, CEOs of Healthwatch, Co production and Commissioning, MPs and councillors with a couple of Charities...
Thank you. It is very difficult to know if you are doing the right thing and most of the time I work on my own without the voice of reason which...
100 %
And I do not blame you 1 bit
The rub is how do we get that to happen, any ideas?:) I have started giving talks at Cambridge university to 1st year students but it may take a...
I agree with what you say about Alasteir Miller YouTube 2015. I'm also glad that you use the term ME/cfs for the reasons you point out. I think...
The problem with these articles they never reach the right place or used to demand change and that needs to change. There is no science that...
We have to recognised where the term has come from and how it will be used by both medical profession and the DWP. As far as the CEP test goes I...
This is huge and needs to be recognised and understood, especially with NIH study. Also all the talking therapies that are targeting the central...
How do you manage to find this stuff and how do they get funding for this? The merry go round of managing 'bloom and bust'
Anyone who asks the question of differences between children and adults in any context needs to be questioned intently What do they term...
A few thoughts about the questions put to Lord Markham. Sadly this shows quite clearly the hidden truths of the situation? Due to the...
Leads with Mental Health so that is all you have to know to understand where it is going
I think we need a response to both the NHS and the BACME understanding of ME to Barroness Scott. She needs to undeniable and very public support...
The people at the protest know only too well the issues with this piece and it shows well the hurdles and the problems those with ME face. The...
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