These conditions are only my area in my advocacy work. I am no a professional in any meaningful sense of the word just a mum (and I like that term...
This is the reason we need good solid data on it all. Bendy joints (especially if a ME patient becomes more bendy) , POTS, Mast Cell or...
From my work with those needing and EHCP with EDS this is transferable to Fabricating or Inducing Illness in a child. You ask for appropriate...
This is compounded by allowing bad research or research written in a way to support Government preferred corporate dictions (which is what we...
I understand that it is the whole profession. I also get your experience about education and the GMC. However you/the public have to start...
It is a murky mess and difficult to get to the bottom of things due to not being given the information fully and with transparency. My point years...
My response to your well thought out reasoning. 1st there must be data. We have no data on numbers of those with ME or how long they have had the...
Thank you for this information
Jon Stone and Alan Carson are editors on the BMJ? who they were trained by and the foundation of their knowledge is important and well after...
Does anyone know? I asked Sonya about the talk given by BACME. she advised me she did not attend and I questioned this as she was on the agenda to...
They are saying only 3 "For the first time, to our knowledge, we provided evidence showing that miRNA expression levels miR-127-3p, miR-140-5p and...
Right so we have to start to unpick what is actually happening and what we think with a bias mind. So how many young people diagnosed as ME with...
This is the concern I have. Each one of the researchers that look at this is then either warned off or taken down. The latter part of this post...
Posts moved from this thread: The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS -...
Again I must keep reiterating the importance of the joints in young people with problems with holding pens, walking and generally in the lower...
It had happened at the beginning of the process and could have included CBT and GET in the guidelines if it was not for the determination of those...
I believe most of the charities were also on the guidelines such as Action for ME. I know RSPCC and Dr Barbados do the Dr Glaser safeguarding...
MAKING SURE RESEARCH WORKS AND THAT THE PUBLIC ARE PROTECTED ! If research produced 1,339,789 false positives impacting on our children should we...
Moved posts If CBT and GET worked we'd all be doing it. Why on earth do they think we wouldn't? If CBT worked then it would have worked with...
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