If you watch the family court reform you can see it all happening
They are on a time limit due to JR but if they don't make a decision they hope they can run the JR out of time. Factor in the the NHS are...
They should have a toolkit as they do with EDS hEDS this is one thing a RT event could be useful for as it has been used in the past as a training...
with all the funding she has she should be challenged on that ? If she cannot fully explain PEM she should be thrown out?
Will give that a go. I have a wicked witch cape somewhere will dig it out and get back to you
It is shocking what they can change subtle changes have big impacts.
If that is the case that was a very clever move in hindsight, but could have backfired so badly for patients. Having been involved in this tossing...
Oh how I wish that was how it worked. Firmly pressing buttons is my occupation at the moment and I do wish the computer and others would take...
This is where the research and directed research needs to be. It also needs to call out theories masquerading as facts. Making the public aware of...
Right so how do we protect young people from this? As they will and are filtering them from ME saying FND is a co morbidity and some cases taking...
You might find this useful to listen to how he feeds into our part knowledge. He does not seem to explain the damage and how it impacts of...
Here we go Functional Neurological Disorder - NORD (National Organization for Rare Disorders) (rarediseases.org)
They seem to accept it. Suffolk, Cambridge filters all those with perplexing presentations such as POTS, ME, cfs, mast cell, EDS etc there. they...
FND is now listed on the Rare Diseases so here we go again. I don't think they have a code for it or listed on the NICE guidelines does it? If I...
PEM is recognised and must be accepted if we are going to move forward with understanding or research. I do not understand why you have such a...
Sadly those geographical areas are increasing due to the teaching of Professor Crawley and Dr Glaser. Full and free consent is not possible...
So what has this got to do with ME research? NICE? and this platform? EVERYTHING! Social Services and the Courts rely on the research and the...
It is good to ask questions and make it as clear as possible. The Social Services are being reviewed and I am not sure they realised the...
Not so much a question as a statement of facts. Young people are not afforded consent as they are not given the opportunity and cannot refuse...
Most, if not all the young people are given no option but to take up the treatment, how does this impact on the young patient and their families...
Separate names with a comma.
