I would say all respect and trust from parents but mostly mothers (as they are the ones who have to witness the carnage that unfolds in these...
Thank you @Andy an important piece of work - thank you. Felt slightly sick when I read what MRC was funding and feel that all our children are...
Words just simply fail. I wonder if this sort of approach to data has been applied in other diseases? If this is done as a matter of course such...
That was my point when in a PEM state it takes very little to push further into it. A cumulative effect.
The problem is most if not all Dr cannot tell the difference and this group are now taking ME/CFS off children who have been diagnosed by the best...
They do mean among other things sensory but this would change with the PEM state and they cycle that goes with it. When you are stable the sensory...
No they are working their way back and I was upset to see ME Association give them a hand this young girl also has CFS [ATTACH]
I get your point and would agree, however when funding is not easy to come by and you are fighting CBT and GET I may just forgive them... a...
Nothing wrong with small sample size and work out what is what. Big sample size would throw in too many differences; where as this gives a good...
Now there is a thought to give you the collywobbles. I dare not look, is anyone brave enough?
:banghead: So let me get my head around that misquote of astronauts - holding hands or not (wonder if that is what it takes to make them better)....
For all those that ask about anti gravity exercising means these are the swings that you exercise on [MEDIA] I am not going to say another word...
I think they have to explain how that is achieved the journey from bed to a journey to where the classes are held. What they mean by bedbound and...
Have people applied and been turned down?
Well that made me grumpy and I should not be surprised but I have to say I am. It would seem they have reinvented the wheel to be a square. I knew...
Have we heard of anyone putting themselves forward and being rejected?
I also thought of what Ron Davies has found with the blood cells not being squidgy enough? It opens up a whole lot of questions. I have sent it to...
I think you will find this interesting https://www.sciencealert.com/hidden-network-of-secret-tunnels-found-in-bones-is-totally-crazy-scientists-say
I think there has been an upsurge in research and acceptance. I also come across this Jo with a few children not even being given tests for this...
There is a new tool Kit for GP https://www.rcgp.org.uk/clinical-and-research/resources/toolkits/ehlers-danlos-syndromes-toolkit.aspx I also find...
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