There was a case in my local area where a cancer faker had garnered much support from the whole town. Fundraising events and donations had...
Yes, sadly he has played his game well and it is only in more recent years that many patients have become aware of what he believes about this...
We knew about the lowered threshold before the release of the data. We just didn’t know whether anyone deteriorated from entry and was counted as...
At the moment Andrew Lloyd is considered by the government to be the “expert” to consult on this illness. The government likes that it can deny...
Clauw is all about central sensitivity and functional disorders, very much MUS related. :banghead:
A doctor once said to me that what I had was an illness - and by that he said he meant he accepted that I didn’t feel well, not that there was...
sci hub doesn’t seem to be working for me :(
I prefer to work all day and hike and cook and sew and ... Alas, I cannot. I choose to lie down to avoid payback, but I’d hardly call it a preference.
It’s not a matter of being convinced. I don’t think Jonathan is in any way dismissing your experience. He’s just saying that there is more than...
I don’t know what the issues have been, but I do know in general that the attitude towards ME/CFS in Australia hasn’t helped. Australia doesn’t...
He has tried for at least 10 years to find a doctor willing to learn and replace him. Several have come and gone in that time but no one has taken...
There is already a wealth of information on how people with other illnesses respond to a CPET. It has long been known that the CPET is reliable...
I th I noticed that as well, but then thought given the day 1 results it didn’t look like PEM. I agree it is a concern though.
This conclusion doesn’t make any sense to me. Work rate (WR) at VT is physiological not determined by how much encouragement is given. The fact...
Welcome @anciendaze nice to see you here :)
It is deliberate. The government’s “expert medical advisor” for ME/CFS is Andrew Lloyd.
In animals “sickness behaviour” is taken as a sign that something is physically wrong that needs to be diagnosed and addressed. An animal who...
What makes you think of linking the 2? I haven’t heard of blood volume being tied to physical conditioning before
There’s CBT for that.
Absolutely she believes being a patient is a role. That’s why they don’t want to see patients given disability support or useful aids because it...
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