Definitely agree, I’ve been wondering whether to say something, but figured it’s probably too late to change once it’s published. It is something...
Sorry to hear of your new diagnoses, but glad to see you’re getting answers. I get a similar pain to intermittant claudication in my legs too...
@Snowdrop I agree completely there should be far more care taken with what is put on the website. My comment was only in relation to the length of...
@Snowdrop I’m pretty certain all of the commitee members have ME/CFS, so it is not unreasonable that illness gets in the way of getting on to...
Yes that was my thoughts too. Thankyou @Action for M.E. for the statement. It’s a step forward, but not far enough. I hope you do take note of...
dbSNP has the frequency for the minor allele at around 43%, so it is a common variant. That doesn’t make it irrelevant though. In Celiac disease...
I think part of the problem is that this is a university where multiple PhD students need a novel hypothesis to research and report on and that is...
“We are international medical practitioners and researchers in the field of myalgic encephalomyelitis (ME), ME advocates, patients and their...
I agree. I am uneasy with trying to lobby government for a change that there is no valid evidence base to point to. Science doesn’t work that way....
Sorry I don’t understand the point of the gif. Because it moves while I’m trying to work out what the charts show I can’t make any sense of it at all.
...and in the Action for ME patient information
Is there any evidence from any trial that people with ME/CFS significantly increased what they could do following these therapies? They don’t...
No, completely different group.
There are plenty who have already tried to educate her. This is not her first trial with cfs.
I think the trial minutes are very valuable in this regard
If it’s anything like ME/CFS in Australia there are a multitude of patients with the diagnosis who probably better fit a chronic fatigue state....
I hope you find a work around. If not, Dante Labs really should redo your test if they are unable to provide your info in a readable format
I think the vaccine makers and researchers accept that there is a rare number of people who are adversely affected by a vaccination, developing...
Seizures lasting hours are not common following injections, nor does the autonomic reaction explain an ongoing seizure disorder. Again it was...
As long as it is good science. I have concerns when adverse events are not studied in case it gives a foothold to anti vaxxers. I was with my...
Separate names with a comma.
