Just an update on my vaccine experience - I posted here a while ago not sure if I should get it or not. I send the ME Ass letter to my GP. Had a...
Good points. The thread is here https://www.s4me.info/threads/book-the-body-keeps-the-score-bps-type-rubbish.16299/#post-280866 The book is...
I've been told similar. After believing it for a couple of years and going along with that narrative, I no longer find it helpful. I actually...
Oh dear God, it really is bad. "The Peak District's quite hilly isn't it?" :banghead:
I think it's the 'immune system response does not settle down - cytokines' bit that's a hypothesis?
I can see your point about the importance of emphasising this is based on a hypothesis but I actually do find it quite helpful as a graphic.
True. But then again, pwLC are affected to varying degrees and their condition might have fluctuated since initial infection so I can see some...
I wonder if perhaps there is a bit of a difference between the experience of sudden onset/ gradual onset. I was gradual onset. For me, even once I...
100% agree. The things that you've listed here Trish are imperative in my opinion and can make the world of a difference. Taking pacing as an...
Brilliant letter. Thank you.
Eh? This is just weird. Who knows, there may be an association between types of trauma and some kinds of health problems (maybe) but I'm 100% sure...
Sorry, I should probably know this, but what are the 2HLA risk alleles?
I use Twilight on my android, I don't know if it's available for apple.
So thoughts don't cause the physical symptoms but emotions do. (Fear is an emotion.) But thoughts are intrinsically linked to emotions - thoughts...
I don't think we should allow the debate about how ME is treated to be tied up with the debate about whether psychological factors can influence...
@Esther12 I think that's a useful note of caution. There may certainly be some people whose LC is anxiety related but it feels like Sharpe is too...
George Monbiot is renewing my faith in humanity. Again. :):):party:
I think the problem is that it shouldn't be down to other patients to break the news to new sufferers that the illness can be long-term. This kind...
Thanks for replying and I hope your symptoms ease soon. I've not had any vaccinations since I got ME. I'm not in a high risk group but my concern...
Exactly this! I couldn't agree more.
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