She's been told that by someone she trusts. Believing what you're told by someone who presents as an expert at a time when you're vulnerable, ill...
Miranda wrote on her insta today 'What I learnt is not a medical cure for chronic illness but the answers I found to live well and joyfully...
Miranda's been talking about chronic illness, including ME, on her social media for a long time. I don't know if the Lyme diagnosis is relatively...
I get a croaky, weak voice a lot and have done since I first got ill. I find it very frustrating and I'm so jealous of people who have a lovely...
What country are you in if you don't mind you asking?
I'm not up to date with the research. I'm going to have to look into why there are no plans for a phase 3 study. But yes, I would definitely want...
It's great that you are feeling better! I am interested to hear your story as I am very interested in the Norwegian research. However, I think...
Also, I just wanted to add, learning to pace yourself can make a huge difference and it is possible to live a good life with this illness, however...
Hi @New POD and welcome. I've been in the position you are in now of desperately looking a 'fix'. I've tried a fair few things and my conclusion...
Important subject area but I agree that the word 'trauma' becomes meaningless if used in so many disparate contexts. I've experienced pretty...
Yep, that's one of the things that makes it feel scary and dystopian.
So first I need a drug to cure ME then a drug that can make me live another 20 years so I can make up for the years lost to this illness. Imagine!...
Aside from PEM, my bad days are often down to my hormones. Monthly cycle has a huge impact. Took me a long time to realise as the symptoms are...
I think it can. It depends on the patient and the treatment. (Based on my observing a relative go through it. But then she is a relative of me who...
It's a bit like saying we're looking for a person with celiac disease to come on our programme about eating bread. There'll always be someone who...
My worry is that they will find someone who says they have ME and can still go for a short run and that will be incredibly dangerous as viewers...
I'm not sure how many people in that age range there are on this forum though? I got the impression we're mostly older! @Ellen thank you for...
I've just had an email from The Chrysalis Effect (even though I've asked to be removed from their mailing list). It says, The word Recovery is...
I thought the program was good. Phil Parker came across as a paranoid conspiracy theorist (or at least trying to appeal to that demographic) with...
I can't remember if I gave permission to share with other researchers. I hope I did. This sounds like an interesting line of enquiry.
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