1. Sign our petition calling on Cochrane to withdraw their review of Exercise Therapy for 'CFS'.
    Dismiss Notice
  2. Guest, the 'News in Brief' for the week beginning 3rd March 2025 is here.
    Dismiss Notice
  3. Welcome! Read the Core Purpose and Values of our forum.
    Dismiss Notice

Search Results

Search Again
Page 4 of 20
  1. Tia
    Post

    Typing myalgic encephalomyelitis by infection at onset: A DecodeME study, 2023, Bretherick et al

    In the independent article, Chris Ponting says: “ME/CFS is a devastating disease affecting a UK population the size of Derby.' - I've not heard...
    Post by: Tia, Aug 24, 2023 in forum: ME/CFS research
  2. Tia
    Post

    Closed UK: DecodeME updates, was recruitment thread.

    I just listened to Wednesday's episode of Woman's Hour: https://www.bbc.co.uk/sounds/play/m001pmkp Martine McCutcheon was on to talk about...
    Post by: Tia, Aug 18, 2023 in forum: Recruitment into current ME/CFS research studies
  3. Tia
    Post

    Contesting the psychiatric framing of ME/CFS, 2017, Spandler and Allen

    It took me years of living with this illness and a lot of time reading and watching events in the ME world to even get close to being able to...
    Post by: Tia, Jul 17, 2023 in forum: Psychosomatic research - ME/CFS and Long Covid
  4. Tia
    Post

    Hydrolyzed Marine Collagen powder

    I tried a collagen supplement earlier this year in powder form. Quite expensive. I gave up trying new supplements etc. years ago but this was...
    Post by: Tia, Jul 7, 2023 in forum: Nutrition, food sensitivity, microbiome treatments
  5. Tia
    Post

    Research news from Bhupesh Prusty

    Thank you Simon, this is really helpful.
    Post by: Tia, Jun 9, 2023 in forum: ME/CFS research news
  6. Tia
    Post

    Research news from Bhupesh Prusty

    The key word here is 'potential'. Definitely interesting but still very early days.
    Post by: Tia, Jun 2, 2023 in forum: ME/CFS research news
  7. Tia
    Post

    International ME/CFS Conference of the Charité Fatigue Center on 11./12. May 2023 in Berlin, supported by the ME/CFS Research Foundation

    On 9th May, ME/CFS Research Foundation tweeted, "We are working to make recordings available after the conference (pending speakers consent). Also...
    Post by: Tia, May 12, 2023 in forum: ME/CFS research news
  8. Tia
    Post

    Doctors with ME: ME/CFS: Top Tips Handout for Doctors

    This looks really good. Well done Doctors with ME. I'd be very happy to show this to my GP.
    Post by: Tia, May 11, 2023 in forum: Resources
  9. Tia
    Post

    International ME/CFS Conference of the Charité Fatigue Center on 11./12. May 2023 in Berlin, supported by the ME/CFS Research Foundation

    Well, I went online at 5pm to watch Prusty's talk and realised that, of course, Germany is one hour ahead of the UK :dead: I'll blame cognitive...
    Post by: Tia, May 11, 2023 in forum: ME/CFS research news
  10. Tia
    Post

    International ME/CFS Conference of the Charité Fatigue Center on 11./12. May 2023 in Berlin, supported by the ME/CFS Research Foundation

    I've received the email addressed to Mr as well, I'm usually Ms, sure I didn't declare myself a Mr on the form. Quite amusing!
    Post by: Tia, May 11, 2023 in forum: ME/CFS research news
  11. Tia
    Post

    International ME/CFS Conference of the Charité Fatigue Center on 11./12. May 2023 in Berlin, supported by the ME/CFS Research Foundation

    I'm a bit confused by the website. Can patients sign up to listen to the talks online?
    Post by: Tia, Apr 30, 2023 in forum: ME/CFS research news
  12. Tia
    Post

    Closed UK: DecodeME updates, was recruitment thread.

    Interesting for us, but if I knew nothing about DecodeME and was encountering the website for the first time, I'm not sure a running total would...
    Post by: Tia, Apr 13, 2023 in forum: Recruitment into current ME/CFS research studies
  13. Tia
    Post

    Noise cancelling devices for sleep?

    Thanks everyone. I had another go with my silicone ear plugs last night but used a 'new' piece so it was soft and pulled off smaller bits as...
    Post by: Tia, Mar 21, 2023 in forum: Sleep Disturbance
  14. Tia
    Thread

    Noise cancelling devices for sleep?

    Unfortunately, I'm being woken up a lot in the night by a house mate getting up to go to toilet/ go downstairs and it's really impacting my...
    Thread by: Tia, Mar 20, 2023, 13 replies, in forum: Sleep Disturbance
  15. Tia
    Post

    Closed UK: DecodeME updates, was recruitment thread.

    I just got my email today too. Very pleased to hear they've managed to extract my DNA!
    Post by: Tia, Mar 15, 2023 in forum: Recruitment into current ME/CFS research studies
  16. Tia
    Post

    Is there anything at all that can be done for food intolerances?

    I developed food sensitivities of about ten years into having ME (I thought I'd got away without them but turned out they were just biding their...
    Post by: Tia, Mar 13, 2023 in forum: Gastrointestinal and Urinary
  17. Tia
    Post

    Research news from Bhupesh Prusty

    Yeah, I don't really understand, read the thread and I'm none the wiser!
    Post by: Tia, Mar 6, 2023 in forum: ME/CFS research news
  18. Tia
    Post

    Closed UK: DecodeME updates, was recruitment thread.

    I think Martin is a member here, I can't remember his user name.
    Post by: Tia, Mar 1, 2023 in forum: Recruitment into current ME/CFS research studies
  19. Tia
    Post

    Maeve Boothby O'Neill - articles about her life, death and inquest

    Utterly heartbreaking. Thank you for writing this piece.
    Post by: Tia, Jan 27, 2023 in forum: General ME/CFS news
  20. Tia
    Post

    Experience with LDN? low dose naltrexone

    I considered trying it about about 8 years ago but I lurked on an LDN for ME facebook group for a year or so and noticed that very few people...
    Post by: Tia, Jan 9, 2023 in forum: Drug and supplement treatments
Showing results 61 to 80 of 395 Next >
Search Again
Page 4 of 20