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  1. MSEsperanza
    Post

    Investigating the effectiveness ... of FITNET-NHS compared to Activity Management to treat paediatric CFS/ME, 2018, Crawley et al. Protocol

    It took me quite a while to find the location where all versions of the protocol are collected:...
    Post by: MSEsperanza, Sep 3, 2019 in forum: Psychosomatic research - ME/CFS and Long Covid
  2. MSEsperanza
    Post

    Investigating the effectiveness ... of FITNET-NHS compared to Activity Management to treat paediatric CFS/ME, 2018, Crawley et al. Protocol

    Stop criteria published protocol, 22 Feb 2018, Trials volume 19, Article number: 136 (2018),...
    Post by: MSEsperanza, Sep 3, 2019 in forum: Psychosomatic research - ME/CFS and Long Covid
  3. MSEsperanza
    Post

    NICE Guideline review: Call for evidence on myalgic encephalomyelitis (or encephalopathy)/chronic fatigue syndrome, deadline 16th Oct 2019

    I assume also this? https://s4me.info/threads/the-norwegian-me-associations-report-on-severe-me.10140/
    Post by: MSEsperanza, Sep 3, 2019 in forum: 2020 UK NICE ME/CFS Guideline
  4. MSEsperanza
    Post

    Investigating the effectiveness ... of FITNET-NHS compared to Activity Management to treat paediatric CFS/ME, 2018, Crawley et al. Protocol

    ...and still updating... Editorial Notes http://www.isrctn.com/ISRCTN18020851
    Post by: MSEsperanza, Sep 3, 2019 in forum: Psychosomatic research - ME/CFS and Long Covid
  5. MSEsperanza
    Post

    Investigating the effectiveness ... of FITNET-NHS compared to Activity Management to treat paediatric CFS/ME, 2018, Crawley et al. Protocol

    I saw this only now. In addition to all already pointed to in the previous comments I found the part about "possible benefits and risks of...
    Post by: MSEsperanza, Sep 3, 2019 in forum: Psychosomatic research - ME/CFS and Long Covid
  6. MSEsperanza
    Post

    RoB 2: a revised tool for assessing risk of bias in randomised trials (2019) Sterne et al.

    Irony? [MEDIA] https://twitter.com/CochraneUK/status/1168170398976004097 Guess who else retweeted this.
    Post by: MSEsperanza, Sep 2, 2019 in forum: Research methodology news and research
  7. MSEsperanza
    Post

    RoB 2: a revised tool for assessing risk of bias in randomised trials (2019) Sterne et al.

    Anyone could help me understand this example? Are there machines for data collection that cannot be repaired or new ones would be too expensive,...
    Post by: MSEsperanza, Aug 31, 2019 in forum: Research methodology news and research
  8. MSEsperanza
    Post

    RoB 2: a revised tool for assessing risk of bias in randomised trials (2019) Sterne et al.

    The affected egos surely could help each other with a bit CBT? On a more serious note, if they just wanted to be good and helpful clinicians,...
    Post by: MSEsperanza, Aug 31, 2019 in forum: Research methodology news and research
  9. MSEsperanza
    Post

    Bristol - New Network - Prof Munafo

    A propos, Prof Munafo is on Twitter: https://twitter.com/MarcusMunafo
    Post by: MSEsperanza, Aug 30, 2019 in forum: Open Letters and Replies
  10. MSEsperanza
    Post

    RoB 2: a revised tool for assessing risk of bias in randomised trials (2019) Sterne et al.

    Authors' affiliations: https://www.bmj.com/content/366/bmj.l4898.full?ijkey=gzAdEdyR713TWzf&keytype=ref#
    Post by: MSEsperanza, Aug 30, 2019 in forum: Research methodology news and research
  11. MSEsperanza
    Post

    Is ME a metabolic problem or a signalling problem?

    (Only able to skim this and related threads and now just slightly amended an older draft which might fit into this thread -- if not, please feel...
    Post by: MSEsperanza, Aug 27, 2019 in forum: ME/CFS research news
  12. MSEsperanza
    Post

    US NIH: Responses to NANDS Request for Information: How to advance ME/CFS Research

    In my case what I perceived as exercise-induced muscle stiffness and weakness was assessed as motor fatigue only after I had provided a video...
    Post by: MSEsperanza, Aug 26, 2019 in forum: General ME/CFS news
  13. MSEsperanza
    Post

    "Body Reprogramming: Patient guide for recovery using the Hyland model"

    From his university's website: Wow. The origins of health and disease / Hyland, Michael E.. - Cambridge : Cambridge University Press, 2011 He...
    Post by: MSEsperanza, Aug 23, 2019 in forum: Psychosomatic news - ME/CFS and Long Covid
  14. MSEsperanza
    Post

    Trial By Error: The School Absence Study, Revisited (Crawley/SMILE)

    [MEDIA] https://twitter.com/Healthy_Control/status/1163441460819234816 [MEDIA] https://twitter.com/some_wise/status/1164332943268966401 [MEDIA]...
    Post by: MSEsperanza, Aug 22, 2019 in forum: General ME/CFS news
  15. MSEsperanza
    Post

    US NIH: Responses to NANDS Request for Information: How to advance ME/CFS Research

    I think both fatiguability and PEM could be measured. IMO it's important to distinguish between the two. Also it could be helpful to distinguish...
    Post by: MSEsperanza, Aug 22, 2019 in forum: General ME/CFS news
  16. MSEsperanza
    Post

    Recruiting: ME Research UK: Investigating sensory processing and cognitive function in people with ME: a pilot study

    A very quick search for studies on post-concussion + both investigators delivered these 2 results (only Sanjay Kumar as co-author): KUMAR, S. ,...
    Post by: MSEsperanza, Aug 21, 2019 in forum: Recruitment into current ME/CFS research studies
  17. MSEsperanza
    Post

    Severe ME day: August 8 2019

    Just saw that this hasn't been posted yet: [MEDIA] "On #severeME day here is a song about my struggle with ME: https://youtu.be/ckBYXPwNaR0 "...
    Post by: MSEsperanza, Aug 17, 2019 in forum: General ME/CFS news
  18. MSEsperanza
    Post

    New poor Guardian article "ME and the perils of internet activism" 28th July 2019

    Another important and wonderful article correcting some media campaigners' spin -- thank you, @dave30th Are you aware that you are not only "a...
    Post by: MSEsperanza, Aug 14, 2019 in forum: General Advocacy Discussions
  19. MSEsperanza
    Post

    Objective assessment of diverse types of MS related fatigue and fatiguability

    Not read yet, not from the Lurija Instiute either, but as they discuss objective measures of fatigue and fatiguability, I just leave it here:...
    Post by: MSEsperanza, Aug 14, 2019 in forum: Other health news and research
  20. MSEsperanza
    Post

    Key Concepts for Informed Health Choices: a framework for helping people learn how to assess treatment claims and make informed choices.

    [MEDIA] https://twitter.com/EricTopol/status/1161003716448624640 (Not sure whether this deserves its own thread.) Edit: Maynard, Matt/ Oxman,...
    Post by: MSEsperanza, Aug 13, 2019 in forum: Research methodology news and research
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