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  1. MSEsperanza
    Post

    Trial By Error: Stupid Studies

    How I look forward to reading a Tuller piece on "Sound Studies on ME" some day. (Edit: This is not meant as criticism. I understand the need to...
    Post by: MSEsperanza, Mar 7, 2019 in forum: General ME/CFS news
  2. MSEsperanza
    Post

    'Consumer-Contested Evidence: Why the ME/CFS Exercise Dispute Matters So Much' PLOS Blog post by Hilda Bastian

    I like that paragraph: I agree that it might be better not to criticize D. Bishop directly and to name particular trials on ME only as examples...
    Post by: MSEsperanza, Mar 7, 2019 in forum: General ME/CFS news
  3. MSEsperanza
    Thread

    UK: Hospital and Outreach Education granted £500k to provide continued education to children absent from school due to long-term illness.

    Moderator note: message copied from thread here...
    Thread by: MSEsperanza, Mar 7, 2019, 2 replies, in forum: General ME/CFS news
  4. MSEsperanza
    Post

    'My robot makes me feel like I haven't been forgotten'

    [MEDIA] https://www.noisolation.com/global/av1/alternative-provision-innovation-fund/ Moderator note: thread on this project here...
    Post by: MSEsperanza, Mar 7, 2019 in forum: General ME/CFS news
  5. MSEsperanza
    Post

    What's behind ME allergies and sensitivities to foods, odors and chemicals?

    I wrote about my experience with food intolerances diagnosed as "pseudo-allergy" here:...
    Post by: MSEsperanza, Mar 3, 2019 in forum: Immunological
  6. MSEsperanza
    Post

    What's behind ME allergies and sensitivities to foods, odors and chemicals?

    Perhaps except for special fragrances like certain perfumes? see: Patch-test results of the North American Contact Dermatitis Group 2005-2006,...
    Post by: MSEsperanza, Mar 3, 2019 in forum: Immunological
  7. MSEsperanza
    Post

    Predictors of chronic fatigue in adolescents six months after acute Epstein-Barr virus infection: a prospective cohort study,2018,Pedersen et al

    Do viral load and other blood work they did actually indicate the severity of infectous mononucleosis? Did they document how long the patients...
    Post by: MSEsperanza, Mar 1, 2019 in forum: 'Conditions related to ME/CFS' news and research
  8. MSEsperanza
    Post

    Characteristics of patients with motor functional neurological disorder in a large UK mental health service (2019) O'Connell, Wessely et al

    I'm concerned about this, too. I first thought maybe some people are reaching for FND to give ME symptoms a new label and a new trial. But I found...
    Post by: MSEsperanza, Mar 1, 2019 in forum: Other psychosomatic news and research
  9. MSEsperanza
    Post

    MUS services in UK and other MUS related issues

    Just was reminded of a different institutionalized approach to unexplained illnesses -- the ZusE Marburg (center for undiagnosed/ unrecognized...
    Post by: MSEsperanza, Mar 1, 2019 in forum: General ME/CFS news
  10. MSEsperanza
    Post

    Trial By Error: And Another Prebuttal…

    [MEDIA] https://en.wikipedia.org/wiki/Archive.today
    Post by: MSEsperanza, Feb 28, 2019 in forum: General ME/CFS news
  11. MSEsperanza
    Post

    Personality and fatal diseases: Revisiting a scientific scandal, 2019, Pelosi

    Yep, see: https://www.s4me.info/threads/mus-services-in-uk-and-other-mus-related-issues.8318/#post-146602 link to the video:...
    Post by: MSEsperanza, Feb 28, 2019 in forum: Other psychosomatic news and research
  12. MSEsperanza
    Post

    Characteristics of patients with motor functional neurological disorder in a large UK mental health service (2019) O'Connell, Wessely et al

    It seems the investigators found a need to "stimulate" demand for their own future studies and treatments...
    Post by: MSEsperanza, Feb 21, 2019 in forum: Other psychosomatic news and research
  13. MSEsperanza
    Post

    Characteristics of patients with motor functional neurological disorder in a large UK mental health service (2019) O'Connell, Wessely et al

    ;) To be fair, I saw this tweet: [MEDIA]
    Post by: MSEsperanza, Feb 21, 2019 in forum: Other psychosomatic news and research
  14. MSEsperanza
    Post

    Characteristics of patients with motor functional neurological disorder in a large UK mental health service (2019) O'Connell, Wessely et al

    O'Connell, N., Nicholson, T., Wessely, S., & David, A. (n.d.). Characteristics of patients with motor functional neurological disorder in a large...
    Post by: MSEsperanza, Feb 21, 2019 in forum: Other psychosomatic news and research
  15. MSEsperanza
    Post

    Intimidation of PACE critics or critics of other Psychosocial research

    [MEDIA]
    Post by: MSEsperanza, Feb 21, 2019 in forum: MEpedia
  16. MSEsperanza
    Post

    Intimidation of PACE critics or critics of other Psychosocial research

    [MEDIA]
    Post by: MSEsperanza, Feb 21, 2019 in forum: MEpedia
  17. MSEsperanza
    Post

    Trial By Error: Professor Sharpe’s Retraction Requests

    So how would you name it, @Esther12 ? I am quite brain-fogged at the moment, but I maybe tried to make a similar point here:...
    Post by: MSEsperanza, Feb 20, 2019 in forum: General ME/CFS news
  18. MSEsperanza
    Post

    Intimidation of PACE critics or critics of other Psychosocial research

    Perhaps some additional useful quotes here? https://forums.phoenixrising.me/threads/petition-opposing-mega.47466/page-44#post-786584
    Post by: MSEsperanza, Feb 20, 2019 in forum: MEpedia
  19. MSEsperanza
    Post

    Intimidation of PACE critics or critics of other Psychosocial research

    Thank you to ME/CFS News for initiating this, and thank you to all who are contributing. I am too ill ATM to contribute properly but would like...
    Post by: MSEsperanza, Feb 20, 2019 in forum: MEpedia
  20. MSEsperanza
    Post

    Caroline Struthers' correspondence and blog on the Cochrane Review: 'Exercise therapy for chronic fatigue syndrome, 2017 and 2019, Larun et al.

    Apologies if this had been already posted - just saw this when I checked which Cochrane sites were currently availble:...
    Post by: MSEsperanza, Feb 19, 2019 in forum: 2021 Cochrane Exercise Therapy Review
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