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  1. MSEsperanza
    Post

    Crowdfunding: Trial By Error: [David Tuller] Reporting on ME, CFS, "medically unexplained symptoms," and related stuff, 2020

    I see no drama, only a dramatic increase in donations.
    Post by: MSEsperanza, Apr 20, 2020 in forum: Fundraising
  2. MSEsperanza
    Post

    Crowdfunding: Trial By Error: [David Tuller] Reporting on ME, CFS, "medically unexplained symptoms," and related stuff, 2020

    It works! But did you intend to have the updates still only on the old site (https://crowdfund.berkeley.edu/project/14941/updates/1 ) and not on...
    Post by: MSEsperanza, Apr 20, 2020 in forum: Fundraising
  3. MSEsperanza
    Post

    Crowdfunding: Trial By Error: [David Tuller] Reporting on ME, CFS, "medically unexplained symptoms," and related stuff, 2020

    ... and the now added link / 3. update on the old site doesn't go to the project[edit] crowdfunding site at all.... :emoji_tea:, @dave30th ?...
    Post by: MSEsperanza, Apr 20, 2020 in forum: Fundraising
  4. MSEsperanza
    Post

    Crowdfunding: Trial By Error: [David Tuller] Reporting on ME, CFS, "medically unexplained symptoms," and related stuff, 2020

    The update seems to have been posted on the page from last years' crowdfounding - at least the link posted above(*) directs me to the old page...
    Post by: MSEsperanza, Apr 20, 2020 in forum: Fundraising
  5. MSEsperanza
    Post

    Patient experiences and the psychosocial benefits of group aquatic exercise to reduce symptoms of ME/CFS: a pilot study, 2020, Broadbent et al

    Thanks for explaining, @dave30th , and thanks @Michiel Tack for substantiating some criticism. I agree it's important to differentiate, and to...
    Post by: MSEsperanza, Apr 20, 2020 in forum: Psychosomatic research - ME/CFS and Long Covid
  6. MSEsperanza
    Post

    Patient experiences and the psychosocial benefits of group aquatic exercise to reduce symptoms of ME/CFS: a pilot study, 2020, Broadbent et al

    Hm, are you sure? The reference cited in @Dolphin's quote from the other Broadbent paper is: Wallman, K. , Morton A., Goodman C., Grove R., and...
    Post by: MSEsperanza, Apr 19, 2020 in forum: Psychosomatic research - ME/CFS and Long Covid
  7. MSEsperanza
    Post

    Question: Coronavirus & home sewn masks?

    How To Stop Face Masks From Fogging Up Your Glasses...
    Post by: MSEsperanza, Apr 18, 2020 in forum: Epidemics (including Covid-19, not Long Covid)
  8. MSEsperanza
    Post

    Advice on mask-wearing to protect against Covid-19

    The Royal Society of Medicine (UK) COVID-19 Series, Episode 6: Policymaking on masks for the general public: evidence-based or eminence-based...
    Post by: MSEsperanza, Apr 18, 2020 in forum: Epidemics (including Covid-19, not Long Covid)
  9. MSEsperanza
    Post

    Energy management education and occupation-related outcomes in adults with chronic diseases: A scoping review, 2020, Farragher et al

    Haven't read the paper, but was surprised by this: Exclusion criteria •The fatigue intervention included one or more other fatigue management...
    Post by: MSEsperanza, Apr 17, 2020 in forum: Psychosomatic research - ME/CFS and Long Covid
  10. MSEsperanza
    Post

    Energy management education and occupation-related outcomes in adults with chronic diseases: A scoping review, 2020, Farragher et al

    The paper isn't open access anymore (at least for me) -- sci-hub link: https://sci-hub.se/10.1177/0308022620904327
    Post by: MSEsperanza, Apr 17, 2020 in forum: Psychosomatic research - ME/CFS and Long Covid
  11. MSEsperanza
    Post

    Cochrane Review: 'Exercise therapy for chronic fatigue syndrome', Larun et al. - New version October 2019 and new date December 2024

    Papers referring to the different versions of the review: https://app.dimensions.ai/details/publication/pub.1121431847 Among the four...
    Post by: MSEsperanza, Apr 6, 2020 in forum: Psychosomatic research - ME/CFS and Long Covid
  12. MSEsperanza
    Post

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    Since all of us -- PWME as well as health professionals -- have to cope with the situation caused by the pandemic in some way, I was thinking...
    Post by: MSEsperanza, Apr 6, 2020 in forum: 2021 Cochrane Exercise Therapy Review
  13. MSEsperanza
    Post

    Cochrane Review: 'Exercise therapy for chronic fatigue syndrome', Larun et al. - New version October 2019 and new date December 2024

    Amendment of the current version of the review: https://www.cochranelibrary.com/cdsr/doi/10.1002/14651858.CD003200.pub8/information#whatsNew...
    Post by: MSEsperanza, Apr 6, 2020 in forum: Psychosomatic research - ME/CFS and Long Covid
  14. MSEsperanza
    Post

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    Not sure whether this has been posted yet: Stakeholder engagement in high-profile reviews pilot...
    Post by: MSEsperanza, Apr 6, 2020 in forum: 2021 Cochrane Exercise Therapy Review
  15. MSEsperanza
    Post

    Coronavirus: Advice from ME organisations

    Thank you to @dave30th for putting the advices from ME Association’s Dr Charles Shepherd on Virology Blog: Among many other useful things, I...
    Post by: MSEsperanza, Mar 27, 2020 in forum: Epidemics (including Covid-19, not Long Covid)
  16. MSEsperanza
    Post

    MUS: Shaky Evidence, Shaky Practice - Talk by David Tuller in Sheffield. 2:30pm 16th March 2020

    :heart::thumbup: @dave30th , @Gecko and all involved
    Post by: MSEsperanza, Mar 17, 2020 in forum: Advocacy Projects and Campaigns
  17. MSEsperanza
    Post

    Coronavirus: Advice from ME organisations

    Dr. Shepherd from the ME Association: @Tom Kindlon
    Post by: MSEsperanza, Mar 16, 2020 in forum: Epidemics (including Covid-19, not Long Covid)
  18. MSEsperanza
    Post

    Coronavirus - worldwide spread and control

    Update from Berlin regarding public transport...
    Post by: MSEsperanza, Mar 14, 2020 in forum: Epidemics (including Covid-19, not Long Covid)
  19. MSEsperanza
    Post

    Coronavirus - worldwide spread and control

    Update from Berlin regarding closure of daycare centers...
    Post by: MSEsperanza, Mar 14, 2020 in forum: Epidemics (including Covid-19, not Long Covid)
  20. MSEsperanza
    Post

    Coronavirus: Advice from ME organisations

    Thanks @Wits_End for posting an excerpt. As much as I appreciate that she reaches out to pwME in this extra stressful situation -- to me the part...
    Post by: MSEsperanza, Mar 14, 2020 in forum: Epidemics (including Covid-19, not Long Covid)
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